CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3051-C59402	C59402	Surgery procedure first metatarsal osteotomy arthrodesis ankle laterality type	Laterality type relative to the ankle surgical first metatarsal osteotomy/arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22619	C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53710	C53710	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time percentage value	Value of the Opposite Worlds Opposite World total time percentile band value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2197-C22586	C22586	Maternal birth date	Date (and time, if applicable and known) the mother of the participant/subject was born	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2205-C22781	C22781	Risk Factor Questionnaire (RFQ) - ages 2-5 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58491	C58491	Activity daily living device type	Type for all activity of daily living devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22605	C22605	Therapy rehabilitation service type	The type of rehabilitation therapy service received by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1968-C56413	C56413	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score	The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20805	C20805	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale	The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F3051-C59345	C59345	Surgery procedure toe flexor lengthen tenotomy laterality type	Laterality type relative to the ankle surgical toe flexor lengthening tenotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53374	C53374	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score age scaled count	Count of Sky Search attention score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59238	C59238	Surgery procedure rectus femoris release transfer knee perform indicator	Indicator of whether the participant/subject has undergone the knee rectus femoris release/transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22789	C22789	Risk Factor Questionnaire (RFQ) - age 12-17 sleep duration indicator	Hours of sleep the subject got in a week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58499	C58499	Transfer device type	Type for all transfer devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1968-C56421	C56421	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator	The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20813	C20813	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale	The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22663	C22663	Medical history gastroesophageal reflux disease (GERD) indicator	Indicator of whether the participant/subject has/had gastroesophageal reflux disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22634	C22634	Speech language pathology focus area language social pragmatic intervention type	The type of intervention used for social language and pragmatics as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59353	C59353	Surgery procedure tibial derotational osteotomy ankle perform type	Type of ankle tibial derotational osteotomy surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22103	C22103	Modified Ashworth Scale - Limb tone testing left hip scale	The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2015-C53628	C53628	Test of Everyday Attention for Children (TEA-Ch) - Score B score	Score of the Score! B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2291-C21107	C21107	Gait abnormality assessment other text	The free-text field for other type of abnormal gait	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59313	C59313	Surgery procedure gastrocnemius resection ankle laterality type	Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58507	C58507	Android application text	Text describing the type of Android application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.