CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3050-C59236	C59236	Surgery procedure patellar tendon shorten advance left knee type	Type of the surgical patellar tendon shortening/advancement procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22787	C22787	Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58497	C58497	Transfer transportation device type	Type for all transfer/transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22611	C22611	Communication device other text	The free-text field related to 'Communication device type' specifying other text. Type for all communication devices the participant/subject currently uses	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2290-C22910	C22910	Physical therapy assistive technical device type	The type of assistive technical device as related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53632	C53632	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct age scaled count	Count of Creature Counting total correct age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20811	C20811	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep satisfaction assessment past week scale	The scale which represents how often the participant was satisfied with his/her sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22661	C22661	Medical history laryngomalacia indicator	Indicator of whether the participant has been diagnosed with layrngomalacia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56434	C56434	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score	The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56315	C56315	NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Cerebral Palsy	Cerebral Palsy
F2015-C53714	C53714	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct count	Count of Code transmission number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59308	C59308	Surgery procedure arthroplasty left hip perform type	Type of the surgical arthroplasty procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2691-C56952	C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2289-C22915	C22915	Ventricular dilatation fourth ventricle qualitative assessment status	The status related to qualitative assessment of fourth ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58671	C58671	Hearing impairment indicator	Indicator of whether participant/subject has hearing impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2294-C19247	C19247	Subject ID	Subject identification ID	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2235-C54623	C54623	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value	Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53651	C53651	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3053-C59186	C59186	Pelvic obliquity left measurement	The measurement in degrees of the left pelvic obliquity	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59214	C59214	Surgery procedure distal femoral extension osteotomy knee perform indicator	Indicator of whether the participant/subject has undergone the knee distal femoral extension osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58475	C58475	Mobility device use location type	Use location type where the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59276	C59276	Surgery procedure femoral derotation osteotomy left hip anatomic site	Anatomic site of the surgical femoral derotation osteotomy procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.