CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22600	C22600	Therapy participant other count	The number of other people participating in the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58486	C58486	Static lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their static lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59287	C59287	Surgery procedure varus derotational osteotomy proximal femur right hip type other text	The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur right hip type" specifying other text.	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22629	C22629	Therapy factor influence session type	The type of factor(s) that influenced the treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59424	C59424	Passive range motion hip joint left side adduction measurement value	Value of the left side hip joint adduction passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22650	C22650	Medical history conductive impairment indicator	Indicator of whether the participant/subject has been affected by conductive impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F3051-C59404	C59404	Surgery procedure first metatarsal osteotomy arthrodesis right ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22621	C22621	Pain scale type	The type of pain scale used to measure the patient or client's pain	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22869	C22869	Imaging magnetic resonance imaging differentiation gray white matter loss indicator	The indicator related to the magnetic resonance imaging having loss of gray/white matter differentiation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2308-C22863	C22863	Modified Ashworth Scale - Limb tone testing left toes muscle movement type	The type of the muscle movement of limb tone testing for the left toes, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2015-C53219	C53219	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets percentage value	Value of the Sky Search percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1968-C56410	C56410	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score	The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59295	C59295	Surgery procedure open reduction hip laterality type	Laterality type relative to the hip surgical open reduction procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2203-C22658	C22658	Medical history bronchiectasis indicator	Indicator of whether the participant/subject has been diagnosed with brochiectasis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2599-C21920	C21920	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2308-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56296	C56296	NIH Toolbox Cognitive Cognition total composition computed score	The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2691-C58501	C58501	Transportation device type	Type for all transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22615	C22615	Rehabilitation physician follow-up care indicator	Indicator for follow-up care from a rehabilitation care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53699	C53699	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score	Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20815	C20815	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale	The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.