CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59252 Surgery procedure adductor lengthen percutaneous left hip anatomic site

Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58654 Cerebral palsy secondary motor type

Type of secondary neuromotor movement experienced by the participant/subject

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C14466 Sensory system global assessment result

The condition and ability of sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C19143 Activity other text

The free text field related to "Activity types" specifying other text. The type of activity

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53624 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score deviation excess five percent cutoff count

Count of the Sky Search attention score difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56351 NIH Toolbox Cognitive – Oral reading recognition english age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56425 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value

The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59300 Surgery procedure proximal femoral resection hip perform indicator

Indicator of whether the participant/subject has undergone the hip proximal femoral resection surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59447 Passive range motion knee joint left side transmalleolar angle measurement value

Value of the left side knee joint transmalleolar angle passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C58662 Predominant MRI brain pattern type

Type of predominant brain pattern associated with MRI findings

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C22787 Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C22611 Communication device other text

The free-text field related to 'Communication device type' specifying other text. Type for all communication devices the participant/subject currently uses

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22910 Physical therapy assistive technical device type

The type of assistive technical device as related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53632 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct age scaled count

Count of Creature Counting total correct age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20811 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep satisfaction assessment past week scale

The scale which represents how often the participant was satisfied with his/her sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22661 Medical history laryngomalacia indicator

Indicator of whether the participant has been diagnosed with layrngomalacia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56434 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score

The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59308 Surgery procedure arthroplasty left hip perform type

Type of the surgical arthroplasty procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C58671 Hearing impairment indicator

Indicator of whether participant/subject has hearing impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59360 Surgery procedure hindfoot arthrodesis ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22845 Modified Ashworth Scale - Limb tone testing right toes scale

The scale of limb tone testing for the right toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59320 Surgery procedure anterior tibialis tendon transfer ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C56952 Crutch use type

Type of crutches which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
Displaying 26 - 50 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.