CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58578 Eat drink assistive device type other text

Text describing the presence of any other eating / drinking device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59194 Gait velocity barefoot condition measurement

Value of the speed measured in meters per second in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C14461 Reflex assessment limb result

The results from reflex limb assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C22607 Rehabilitation start age value

The age of the participant/subject at the start of the episode of rehabilitation

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C56350 NIH Toolbox Cognitive – Oral reading recognition english age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59339 Surgery procedure posterior tibialis lengthen right ankle type

Type of posterior tibialis lengthening surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C52433 Surgical history procedure bony orthopedic surgery type

Type of bony orthopedic surgery

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59202 Gait profile score orthotic condition right value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59232 Surgery procedure semitendinosus transfer adductor magnus knee perform indicator

Indicator of whether the participant/subject has undergone the knee semitendinosus transfer to adductor magnus surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22615 Rehabilitation physician follow-up care indicator

Indicator for follow-up care from a rehabilitation care physician

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22783 Risk Factor Questionnaire (RFQ) - age 2-5 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C20810 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep sufficient assessment past week scale

The scale which represents how often the participant got enough sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22906 Physical therapy intervention type

The type of intervention related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C22636 Speech language pathology focus area cognitive development skill intervention type

The type of intervention used for cognitive and developmental skills as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22062 Modified Ashworth Scale - Limb tone testing left shoulder scale

The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C18945 Reflex plantar right response other text

The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C22596 Therapy setting type

The setting related to therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C20818 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale

The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22644 Speech language pathology focus area vocation job intervention type

The type of intervention used for vocation and jobs as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56321 NIH Toolbox Cognitive – List scoring working memory age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59355 Surgery procedure tibial derotational osteotomy external left ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.