CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C51711	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 6:5 observation text	Text describing the observations made on the subject's sketch for the age norm of 6 years and 5 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Cerebral Palsy	Cerebral Palsy
C50936	Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story B fish where recognition score	Score for the participant's recognition of where the girl went fishing in Story B - Fishing Story, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)	Supplemental	Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2)	True	Cerebral Palsy	Cerebral Palsy
C21117	Subject name	Name of subject/participant.	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Cerebral Palsy	Cerebral Palsy
C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale.	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
C51671	Grade status	The status of the subject's grade level in school, if applicable.	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Cerebral Palsy	Cerebral Palsy
C22887	Gait oxygen cost walking value	The metabolic cost of steady-state walking value (mL/kg/m)	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
C58508	Dedicate speech generating device manufacturer name	Name of manufacturer of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C22595	Therapy session type	The type of session in which the patient or client received therapy.	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
C50445	Child and Adolescent Scale of Environment (CASE) - Problem comment other text	The free-text field describing any other problems or comments about the child, as part of the Child Adolescent Scale of Environment (CASE)	Supplemental	Child and Adolescent Scale of Environment (CASE)	True	Cerebral Palsy	Cerebral Palsy
C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
C22672	Medical history behavior difficulty indicator	Indicator of whether participant/subject has/had behavior difficulties	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C51149	Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal learning recognition 9 older semantic error item score	Score for a 9 and older participant's incorrect response to the selected Verbal Learning Recognition Item that has a semantic resemblance to words on the original list, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)	Supplemental	Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2)	True	Cerebral Palsy	Cerebral Palsy
C22643	Speech language pathology focus area social participation intervention type	The type of intervention used for social participation as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
C50984	Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal working memory level B item bonus score	Bonus score for the selected Verbal Working Memory - Level B Item, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)	Supplemental	Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2)	True	Cerebral Palsy	Cerebral Palsy
C56326	NIH Toolbox Cognitive ? Dimensional change card sort age 3 up computed score	The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
C55958	California Verbal Learning Test - Second Edition (CVLT-II) - Delayed recall trial intrusion total raw score	Total intrusions raw score for delayed recall trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Cerebral Palsy	Cerebral Palsy
C51109	Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Participant attention concentration observation text	Free text field for recording observations about the participant's attention/concentration, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)	Supplemental	Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2)	True	Cerebral Palsy	Cerebral Palsy
C50680	Examiner name	The name of the person performing the exam.	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
C51719	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 8:1 observation text	Text describing the observations made on the subject's sketch for the age norm of 8 years and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Cerebral Palsy	Cerebral Palsy
C50944	Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story C first day weather recognition score	Score for the participant's recognition of the weather on the boy's first day at his job in Story C - Job Story, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)	Supplemental	Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2)	True	Cerebral Palsy	Cerebral Palsy
C55912	California Verbal Learning Test - Second Edition (CVLT - II) - Trial correct word count	Number of correct words recited by the subject, as part of California Verbal Learning Test- Second Edition (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Cerebral Palsy	Cerebral Palsy
C22847	Modified Ashworth Scale - Limb tone testing right shoulder muscle movement type	The type of the muscle movement of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale.	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
C51679	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 1:4 spontaneous scribble observation text	Text describing the observations made on the subject's spontaneous scribble sketch for the age norm of 1 year and 4 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Cerebral Palsy	Cerebral Palsy
C58568	Dynamic upper extremity orthosis splint use anatomic site laterality type	Laterality type of dynamic upper extremity orthosis splints anatomic site used by participant/subject.	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.