CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53648 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement age scaled count

Count of Sky Search dual task decrement age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59211 Surgery procedure anterior hemi epiphyseodesis left knee other text

The free-text field related to "Surgery procedure anterior hemi-epiphyseodesis left knee type" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58666 Communication type

Type of communication as indicated by the Communication Function Classification System (CFCS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C22594 Communication Function Classification System communication method used type

The type of communication method(s) used, given by the Communication Function Classification System (CFCS)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56284 NIH Toolbox Cognitive ? Cognition fluid composite computed score

The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C53658 Test of Everyday Attention for Children (TEA-Ch) - Map mission B score

Score of Mission Map B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59189 Assistive device type other text

The free-text field related to "Assistive device type" specifying other assistive device types currently used by the participant/subject

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59219 Surgery procedure distal femoral extension osteotomy right knee other text

The free-text field related to "Surgery procedure distal femoral extension osteotomy right knee type" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58480 AFO type

Type of ankle-foot orthosis (AFO) used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59281 Surgery procedure varus derotational osteotomy proximal femur hip laterality type

Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22603 Therapy month frequency

The monthly frequency of the patient or client's treatment session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59417 Passive range motion hip joint left side internal rotation measurement value

Value of the left side hip joint internal rotation passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56292 NIH Toolbox Cognitive ? Cognition early childhood composite age adjusted scale score

The age adjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C53670 Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation excess five percent cutoff count

Count of the Score dual task difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C58488 Position device type

Type for all positioning devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59289 Surgery procedure pelvic osteotomy hip laterality type

Laterality type relative to the hip surgical pelvic osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22900 Manual Ability Classification System (MACS) - Level scale

The scale level related to the Mini-Manual Ability Classification System (MACS)

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59428 Passive range motion knee joint type

Type of knee joint passive range of motion

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22652 Medical history recurrent ear infection indicator

Indicator of whether the participant/subject has been affected by recurrent ear infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Core Vital Signs Cerebral Palsy Cerebral Palsy
C59249 Surgery procedure adductor lengthen hip perform indicator

Indicator of whether the participant/subject has undergone the hip adductor lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22623 Face Legs Activity Cry Consolability (FLACC) - Criteria type

The type of criteria being scored as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.