CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3051-C59329	C59329	Surgery procedure posterior tibialis tendon transfer ankle laterality type	Laterality type relative to the ankle surgical posterior tibialis tendon transfer procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59328	C59328	Surgery procedure posterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59327	C59327	Surgery procedure anterior tibialis tendon transfer right ankle complete anatomic site	Anatomic site of the anterior tibialis tendon transfer right ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59326	C59326	Surgery procedure anterior tibialis tendon transfer right ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer right ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59325	C59325	Surgery procedure anterior tibialis tendon transfer right ankle type	Type of anterior tibialis tendon transfer surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59324	C59324	Surgery procedure anterior tibialis tendon transfer left ankle complete anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59323	C59323	Surgery procedure anterior tibialis tendon transfer left ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59322	C59322	Surgery procedure anterior tibialis tendon transfer left ankle type	Type of anterior tibialis tendon transfer surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59321	C59321	Surgery procedure anterior tibialis tendon transfer ankle laterality type	Laterality type relative to the ankle surgical anterior tibialis tendon transfer procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59320	C59320	Surgery procedure anterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59319	C59319	Surgery procedure achilles tendon lengthen right ankle type	Type of achilles tendon lengthening surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59318	C59318	Surgery procedure achilles tendon lengthen left ankle type	Type of achilles tendon lengthening surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2204-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59317	C59317	Surgery procedure achilles tendon lengthen ankle laterality type	Laterality type relative to the ankle surgical achilles tendon lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59316	C59316	Surgery procedure achilles tendon lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59315	C59315	Surgery procedure gastrocnemius resection right ankle type	Type of gastrocnemius resection surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59314	C59314	Surgery procedure gastrocnemius resection left ankle type	Type of gastrocnemius resection surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59313	C59313	Surgery procedure gastrocnemius resection ankle laterality type	Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59312	C59312	Surgery procedure gastrocnemius resection ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3052-C59311	C59311	Surgery procedure arthroplasty right hip perform type other text	The free-text field related to "Surgery procedure arthroplasty right hip perform type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59310	C59310	Surgery procedure arthroplasty left hip perform type other text	The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59309	C59309	Surgery procedure arthroplasty right hip perform type	Type of the surgical arthroplasty procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59308	C59308	Surgery procedure arthroplasty left hip perform type	Type of the surgical arthroplasty procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59307	C59307	Surgery procedure arthroplasty hip laterality type	Laterality type relative to the hip surgical arthroplasty procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59306	C59306	Surgery procedure arthroplasty hip perform indicator	Indicator of whether the participant/subject has undergone the arthroplasty surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.