CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C59366	Surgery procedure calcaneal osteotomy left ankle type	Type of calcaneal osteotomy surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59365	Surgery procedure calcaneal osteotomy ankle laterality type	Laterality type relative to the ankle surgical calcaneal osteotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59364	Surgery procedure calcaneal osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle calcaneal osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59363	Surgery procedure hindfoot arthrodesis right ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59362	Surgery procedure hindfoot arthrodesis left ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59361	Surgery procedure hindfoot arthrodesis ankle laterality type	Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59360	Surgery procedure hindfoot arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59359	Surgery procedure tibial derotational osteotomy internal right ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59358	Surgery procedure tibial derotational osteotomy internal left ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59357	Surgery procedure tibial derotational osteotomy internal ankle laterality type	Laterality type relative to the ankle surgical tibial derotational osteotomy internal procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59356	Surgery procedure tibial derotational osteotomy external right ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59355	Surgery procedure tibial derotational osteotomy external left ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59354	Surgery procedure tibial derotational osteotomy external ankle laterality type	Laterality type relative to the ankle surgical tibial derotational osteotomy external procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59353	Surgery procedure tibial derotational osteotomy ankle perform type	Type of ankle tibial derotational osteotomy surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59352	Surgery procedure tibial derotational osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59351	Surgery procedure plantar fascia release right ankle type	Type of plantar fascia release surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59350	Surgery procedure plantar fascia release left ankle type	Type of plantar fascia release surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59349	Surgery procedure plantar fascia release ankle laterality type	Laterality type relative to the ankle surgical plantar fascia release procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59348	Surgery procedure plantar fascia release ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle plantar fascia release surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59347	Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site	Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59346	Surgery procedure toe flexor lengthen tenotomy left ankle anatomic site	Anatomic site of the toe flexor lengthen tenotomy procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59345	Surgery procedure toe flexor lengthen tenotomy laterality type	Laterality type relative to the ankle surgical toe flexor lengthening tenotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59344	Surgery procedure toe flexor lengthen right ankle anatomic site	Anatomic site of the surgical toe flexor lengthening procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59343	Surgery procedure toe flexor lengthen left ankle anatomic site	Anatomic site of the surgical toe flexor lengthening procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C59342	Surgery procedure toe flexor lengthen ankle laterality type	Laterality type relative to the ankle surgical toe flexor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.