CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2691-C58495	C58495	Toilet device type	Type for all toileting devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58494	C58494	Bath device type other text	Text describing the presence of any other bathing device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58493	C58493	Activity Daily Living device type other text	Text describing the presence of any other activity of daily living device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58492	C58492	Bath device type	Type for all bathing devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58491	C58491	Activity daily living device type	Type for all activity of daily living devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58490	C58490	Position device type other text	Text describing the presence of any other positioning device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58489	C58489	Seat lie position device type	Type of seated or lying position device currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58488	C58488	Position device type	Type for all positioning devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58487	C58487	Static lower extremity stretch orthosis splint use anatomic site	Anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58574	C58574	Static lower extremity stretch orthosis splint use anatomic site laterality type	Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58486	C58486	Static lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their static lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58485	C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58484	C58484	Dynamic lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58483	C58483	Static upper extremity orthosis splint use anatomic site	Anatomic site of the static upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58481	C58481	Dynamic upper extremity orthosis splint use anatomic site	Anatomic site of the dynamic upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58479	C58479	Orthosis laterality type	Laterality type of orthoses used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58478	C58478	Orthoses type	Type for all orthoses currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58477	C58477	Cane stick use laterality type	Laterality type with which the participant/subject uses their cane/stick	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58630	C58630	Crutch use laterality type	Laterality type with which the participant/subject uses their crutches	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58476	C58476	Mobility device use location type other text	Text describing the presence of any other mobility device location use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58618	C58618	Mobility device use propel type other text	Text describing other propulsion type of mobility device use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58475	C58475	Mobility device use location type	Use location type where the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58474	C58474	Mobility device use distance type	Distance use type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2289-C56997	C56997	Neonatal brain injury pattern classification	The National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.