CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1889
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received.

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22612 Home modification provide indicator

Indicates if the participant/subject was provided with any home modifications.

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C58503 Communication device category type other text

The free-text field related to 'Communication devices category type', specifying other text.

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58502 Communication devices category type

Type of category for all communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22609 Communication device new provide indicator

Whether the participant/subject was provided with new communication device (i.e., touch screen)

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Cerebral Palsy Cerebral Palsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Cerebral Palsy Cerebral Palsy
C58675 Respiratory ventilation support assist other type text

Text describing another type of respiratory ventilation or support assist used by participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58674 Respiratory ventilation support assist type

Type of respiratory support / ventilation assist type used by the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58673 Respiratory ventilation support assist indicator

Indicator of whether respiratory support and ventilation assistance of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58672 Hearing impairment severity type

Type of hearing impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58671 Hearing impairment indicator

Indicator of whether participant/subject has hearing impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58670 Visual impairment severity type

Type of visual impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58669 Visual impairment indicator

Indicator of whether participant has visual impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58668 Intellectual impairment type

Type of intellectual impairment of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58667 Eating drinking type

Type of eating and drinking as indicated by the Eating and Drinking Classification System (EDACS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58666 Communication type

Type of communication as indicated by the Communication Function Classification System (CFCS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58665 Cerebral palsy upper limb function type

Type of upper limb function as indicated by the Manual Ability Classification System (MACS) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58664 Cerebral palsy fine motor function type

Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58663 Cerebral palsy gross motor function type

Type of gross motor function as indicated by the Gross Motor Function Classification System (GMFC) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58662 Predominant MRI brain pattern type

Type of predominant brain pattern associated with MRI findings

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58661 Post-neonatal specific exact cause text

Text describing the cause of the post-neonatal injury or abnormality

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58660 Timing injury abnormality type

Type as related to the point in time of injury or abnormality

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58659 Cerebral palsy distribution primarily bilateral type

Type of CP distribution primarily bilateral subtype experienced by the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58657 Hemiplegia laterality type

Hemiplegia laterality of interest

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.