CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 226 - 250 of 2138
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C07509 Family Assessment Device (FAD) - Need reminder task indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members need reminding when asked to perform a task, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07469 Family Assessment Device (FAD) - Too involve trouble indicator

Indicator reflecting the partisan/subject's agreement with the statement that his or her family become too involved when someone is in trouble

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C07518 Family Assessment Device (FAD) - Intrude each other life indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members often intrude on each others lives, even though they mean well, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07478 Family Assessment Device (FAD) - Misread family member word indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family can't tell how someone is feeling from what they are saying, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07548 FAD-GF Subscale value

Value of General Function Scale total score

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07486 Family Assessment Device (FAD) - Difficult talk about tender feeling indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has difficulty talking about each others tender feelings, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C05135 Therapy rehabilitation end date time

Date (and time, if applicable and known) on which the therapy or rehabilitation ended

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C07360 Participation Assessment with Recombined Tools-Objective (PART-O) - Internet communication number score

Score for the number of times the participant/subject uses the Internet for communication, such as for e-mail, visiting chat rooms or instant messaging in a typical week as part of Participation Assessment with Recombined Tools - Objective (PART-O)

Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 Cerebral Palsy Cerebral Palsy
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

Supplemental-Highly Recommended Behavioral History Cerebral Palsy Cerebral Palsy
C07494 Family Assessment Device (FAD) - Particular duty responsibility indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members each have a particular set of duties and responsibilities, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07372 Participation Assessment with Recombined Tools-Objective (PART-O) - Live significant other indicator score

Score for indicating whether the participant/subject lives with a spouse or a significant other as part of Participation Assessment with Recombined Tools - Objective (PART-O)

Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 Cerebral Palsy Cerebral Palsy
C07502 Family Assessment Device (FAD) - Resolve most emotional upset indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family resolves most the emotional upsets that arise, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07510 Family Assessment Device (FAD) - Make decision solve problem indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family is able to make decisions about how to solve problems, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07470 Family Assessment Device (FAD) - Crisis support each other indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family turns to each other for support in times of crisis, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C08147 Data source

Source of the data provided on the case report form

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Cerebral Palsy Cerebral Palsy
C09942 World Health Organization Quality of Life (WHOQOL-BREF) - information available daily scale

Scale used to assess the availability of information needed in the participant's daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
C08177 Hemorrhage indicator

Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C09950 World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale

Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
C09934 World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale

Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C09943 World Health Organization Quality of Life (WHOQOL-BREF) - leisure activity opportunity scale

Scale used to assess leisure activity opportunity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
C09935 World Health Organization Quality of Life (WHOQOL-BREF) - life meaningful scale

Scale used to assess the extent to which the participant feels life is meaningful, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 2138

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.