CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1889
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C07523 Family Assessment Device (FAD) - Tell member no like indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family tells each other that they don't like what someone has done, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07483 Family Assessment Device (FAD) - No emotional response indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members don't respond emotionally, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07357 Participation Assessment with Recombined Tools-Objective (PART-O) - Socialize friend number score

Score for the number of times the participant/subject will socialize with friends in person or by phone. This does not include socializing with family members in a typical week as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07491 Family Assessment Device (FAD) - No clear expectation toilet habit indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has no clear expectations for each other about toilet habits, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C07368 Participation Assessment with Recombined Tools-Objective (PART-O) - Sport spectator number score

Score for the number of times the participant/subject has attended a sports event in person as a spectator in a typical month as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07500 Family Assessment Device (FAD) - Feel accept individual indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members feel accepted for who they are, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

 Supplemental Demographics False Cerebral Palsy Cerebral Palsy
C07508 Family Assessment Device (FAD) - No rule standard indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has no rules or standards, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07468 Family Assessment Device (FAD) - Check on family member indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has to check up on each other when someone asks to do someone to do something, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07516 Family Assessment Device (FAD) - No communication angry indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family does not talk to each other when angry, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07476 Family Assessment Device (FAD) - Act decision regard problem indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family acts on their decisions regarding problems, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07524 Family Assessment Device (FAD) - Think different solve problem indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family thinks differently to solve problems, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07484 Family Assessment Device (FAD) - Emergency aware indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family knows what to do in an emergency, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07358 Participation Assessment with Recombined Tools-Objective (PART-O) - Socialize family number score

Score for the number of times the participant/subject will socialize with family and relatives in person or by phone in a typical week as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07492 Family Assessment Device (FAD) - Show love indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family can't show love for each other, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C05135 Therapy rehabilitation end date time

Date (and time, if applicable and known) on which the therapy or rehabilitation ended

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.

 Supplemental-Highly Recommended Behavioral History False Cerebral Palsy Cerebral Palsy
C07369 Participation Assessment with Recombined Tools-Objective (PART-O) - Religious spiritual service number score

Score for the number of times the participant/subject attends religious or spiritual services in a typical month as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07501 Family Assessment Device (FAD) - Show interest achieve something personally indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members only show interest in each other when they are able to get something out of it personally, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07509 Family Assessment Device (FAD) - Need reminder task indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members need reminding when asked to perform a task, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07469 Family Assessment Device (FAD) - Too involve trouble indicator

Indicator reflecting the partisan/subject's agreement with the statement that his or her family become too involved when someone is in trouble.

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07517 Family Assessment Device (FAD) - Generally dissatisfy family duty indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members are generally dissatisfied when assigned family duties, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07477 Family Assessment Device (FAD) - Attention only when interest indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members are only attentive when they are interested, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07525 FAD Total score value

Value of sum of all scores

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
Displaying 201 - 225 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.