CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1889
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C05135 Therapy rehabilitation end date time

Date (and time, if applicable and known) on which the therapy or rehabilitation ended

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C07360 Participation Assessment with Recombined Tools-Objective (PART-O) - Internet communication number score

Score for the number of times the participant/subject uses the Internet for communication, such as for e-mail, visiting chat rooms or instant messaging in a typical week as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.

 Supplemental-Highly Recommended Behavioral History False Cerebral Palsy Cerebral Palsy
C07494 Family Assessment Device (FAD) - Particular duty responsibility indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members each have a particular set of duties and responsibilities, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07372 Participation Assessment with Recombined Tools-Objective (PART-O) - Live significant other indicator score

Score for indicating whether the participant/subject lives with a spouse or a significant other as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07502 Family Assessment Device (FAD) - Resolve most emotional upset indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family resolves most the emotional upsets that arise, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07510 Family Assessment Device (FAD) - Make decision solve problem indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family is able to make decisions about how to solve problems, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07470 Family Assessment Device (FAD) - Crisis support each other indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family turns to each other for support in times of crisis, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07518 Family Assessment Device (FAD) - Intrude each other life indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family members often intrude on each others lives, even though they mean well, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07478 Family Assessment Device (FAD) - Misread family member word indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family can't tell how someone is feeling from what they are saying, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07348 Participation Assessment with Recombined Tools-Objective (PART-O) - Average total score

Score for the average of the combined score of each of the answered questions about productivity, social relations, and out and about as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07487 Family Assessment Device (FAD) - Trouble meet financial obligation indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has trouble meeting the family's financial obligations, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07361 Participation Assessment with Recombined Tools-Objective (PART-O) - Go out house day score

Score for the number of days the participant/subject goes out of the house to go somewhere in a typical week. It could be anywhere, it doesn't have to be anyplace "special" as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

 Supplemental-Highly Recommended Behavioral History False Cerebral Palsy Cerebral Palsy
C07495 Family Assessment Device (FAD) - Family bad feeling indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has lots of bad feelings among each other, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07373 Participation Assessment with Recombined Tools-Objective (PART-O) - Ongoing intimate relationship indicator score

Score for indicating whether the participant/subject is currently in an ongoing intimate, romantic or sexual, relationship as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07503 Family Assessment Device (FAD) - Tenderness take second place indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family takes tenderness second place to other things in the family, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07511 Family Assessment Device (FAD) - Unexpect break rule indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family doesn't know what to expect when rules are broken, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07471 Family Assessment Device (FAD) - Lost during emergency indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family does not know what to do when an emergency comes up, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07519 Family Assessment Device (FAD) - Dangerous situation rule indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family have rules about dangerous situations, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07479 Family Assessment Device (FAD) - Spread out family task indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family don't spread their tasks around enough, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07351 Participation Assessment with Recombined Tools-Objective (PART-O) - Active homemake time score

Score for the number of hours in a typical week the participant/subject will spend in active homemaking, including cleaning, cooking, and raising children as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07488 Family Assessment Device (FAD) - Discuss problem indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family tries to discuss how to solve problems, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
C07363 Participation Assessment with Recombined Tools-Objective (PART-O) - Eat restaurant number score

Score for the number of times the participant/subject eats out in a restaurant in a typical month as part of Participation Assessment with Recombined Tools - Objective (PART-O).

 Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 True Cerebral Palsy Cerebral Palsy
C07496 Family Assessment Device (FAD) - Hit people rule indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has rules about hitting people, as part of the Family Assessment Device (FAD)

 Supplemental Family Assessment Device (FAD) True Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.