CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 126 - 150 of 1889
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08669 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator

Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08670 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08662 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence city text

Text specifying the participant's/subject's first city or town of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08663 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text

Text specifying the participant's/subject's first state of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08665 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence country text

Text specifying the participant's/subject's first country of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08666 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type

Type describing the participant's/subject's first location of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C08667 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence well water indicator

Indicator as to whether the participant's/subject's source of drinking water was a private well at the first residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken.

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C17399 Global unique identifier number

Global Unique ID (GUID) which uniquely identifies a subject

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Cerebral Palsy Cerebral Palsy
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant.

Supplemental-Highly Recommended Behavioral History Cerebral Palsy Cerebral Palsy
C00328 Prior traumatic injury type

General location of traumatic injury, if evidence of prior traumatic injury

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00327 Prior traumatic injury indicator

Indicator of prior traumatic injury found either historically, previous emergency department visits, radiographic findings, or signs or symptoms at time of presentation.

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C07479 Family Assessment Device (FAD) - Spread out family task indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family don't spread their tasks around enough, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
C07348 Participation Assessment with Recombined Tools-Objective (PART-O) - Average total score

Score for the average of the combined score of each of the answered questions about productivity, social relations, and out and about as part of Participation Assessment with Recombined Tools - Objective (PART-O).

Supplemental Participation Assessment with Recombined Tools-Objective (PART-O)-17 Cerebral Palsy Cerebral Palsy
C07487 Family Assessment Device (FAD) - Trouble meet financial obligation indicator

Indicator reflecting the participant/subject's agreement with the statement that his or her family has trouble meeting the family's financial obligations, as part of the Family Assessment Device (FAD)

Supplemental Family Assessment Device (FAD) Cerebral Palsy Cerebral Palsy
Displaying 126 - 150 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.