CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 101 - 125 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C17479	Cardiovascular history ischemia heart disease indicator	Indicator as to whether the participant/subject has or had ischemia heart disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17489	Psychotic disorder indicator	Indicator as to whether the participant/subject has had a psychotic disorder diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17464	Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17472	Cardiovascular history arrhythmia ventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17541	Tardieu Scale assistive device text	Text identifying an assistive device used by the participant/subject for an immovable joint in a limb	Exploratory	Tardieu Scale	False	Cerebral Palsy	Cerebral Palsy
C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C15910	Assessment date and time	The date of participant's injury	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
C15910	Assessment date and time	The date of participant's injury	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
C06192	Fecal incontinence past three month average frequency	Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C06316	Menstruation scale	Scale for how the female participant's menstruation is affected by the spinal cord injury	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
C08663	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text	Text specifying the participant's/subject's first state of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
C08664	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number	Number specifying the participant's/subject's first zip code of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
C08665	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence country text	Text specifying the participant's/subject's first country of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
C08666	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type	Type describing the participant's/subject's first location of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
C08667	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence well water indicator	Indicator as to whether the participant's/subject's source of drinking water was a private well at the first residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
C08668	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator	Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.