CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20820 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale

The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20831 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale

The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20832 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale

The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20814 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep problem assessment past week scale

The scale which represents how often the participant had a problem with sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20822 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale

The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20835 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale

The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20806 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale

The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20815 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale

The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20823 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale

The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20807 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep deepness assessment past week scale

The scale which represents how often the participant's sleep was deep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20817 Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale

The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20827 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale

The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20809 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep quality assessment past week scale

The scale which represents the participant's description of his/her sleep quality in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

 Supplemental Physical Therapy Individual Session False Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

 Supplemental Occupational Therapy Treatment Session: Cerebral Palsy False Cerebral Palsy Cerebral Palsy
Displaying 401 - 425 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.