CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2207-C19247	C19247	Subject ID	Subject identification ID	Core	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F1968-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2294-C19247	C19247	Subject ID	Subject identification ID	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C19247	C19247	Subject ID	Subject identification ID	Supplemental-Highly Recommended	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2205-C19247	C19247	Subject ID	Subject identification ID	Core	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2200-C19247	C19247	Subject ID	Subject identification ID	Core	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2295-C19247	C19247	Subject ID	Subject identification ID	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2293-C19247	C19247	Subject ID	Subject identification ID	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2204-C19247	C19247	Subject ID	Subject identification ID	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2291-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2200-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2295-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2814-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2202-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2203-C19760	C19760	Medical history strabismus diagnosis indicator	Indicator of medical history of strabismus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19769	C19769	Medical history pulmonary aspiration diagnosis indicator	Indicator of history of aspiration	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C19836	C19836	Pain anatomic site text	Anatomic Site of body pain	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2290-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2060-C20811	C20811	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep satisfaction assessment past week scale	The scale which represents how often the participant was satisfied with his/her sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2060-C20819	C20819	Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale	The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2060-C20829	C20829	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale	The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy

Displaying 376 - 400 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.