CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2293-C17494	C17494	Delay language cognitive milestone indicator	Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2203-C17479	C17479	Cardiovascular history ischemia heart disease indicator	Indicator as to whether the participant/subject has or had ischemia heart disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C19157	C19157	Primary care physician follow-up care indicator	Indicator for follow-up care from a primary care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C22615	C22615	Rehabilitation physician follow-up care indicator	Indicator for follow-up care from a rehabilitation care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C22616	C22616	Orthopedic surgeon follow-up care indicator	Indicator for follow-up care from an orthopedic surgeon	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C22617	C22617	Other physician follow-up care indicator	Indicator for follow-up care from another kind of physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2122-C08517	C08517	36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator	Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08513	C08513	36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator	Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08516	C08516	36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator	Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08519	C08519	36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator	Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08518	C08518	36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator	Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08514	C08514	36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator	Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08515	C08515	36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator	Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2292-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19769	C19769	Medical history pulmonary aspiration diagnosis indicator	Indicator of history of aspiration	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19760	C19760	Medical history strabismus diagnosis indicator	Indicator of medical history of strabismus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2202-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2203-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2290-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2292-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2203-C00327	C00327	Prior traumatic injury indicator	Indicator of prior traumatic injury found either historically, previous emergency department visits, radiographic findings, or signs or symptoms at time of presentation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.