CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C14289	C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2203-C14536	C14536	Seizure diagnosis method type	Describes how the diagnosis of seizure was established	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C13520	C13520	Dysphagia indicator	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58474	C58474	Mobility device use distance type	Distance use type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2206-C22790	C22790	Risk Factor Questionnaire (RFQ) - residential history age 0-17 residence duration	Duration at residence lived from birth through age 17	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58622	C58622	Number minutes day duration	Duration in minutes per day a stander used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2197-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2294-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2206-C08670	C08670	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency	Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58484	C58484	Dynamic lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C56954	C56954	Dynamic upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58473	C58473	Mobility device use frequency type	Frequency type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58486	C58486	Static lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their static lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58482	C58482	Static upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2203-C00328	C00328	Prior traumatic injury type	General location of traumatic injury, if evidence of prior traumatic injury	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14439	C14439	Motor exam global assessment abnormality type	Global assessment abnormality type found during the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2200-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2202-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2290-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2294-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.