CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Core Demographics False Cerebral Palsy Cerebral Palsy
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

 Supplemental Demographics False Cerebral Palsy Cerebral Palsy
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

 Supplemental Surgical and Hospitalization History False Cerebral Palsy Cerebral Palsy
C13191 Walking speed value

Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line

 Supplemental-Highly Recommended Walking Speed False Cerebral Palsy Cerebral Palsy
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

 Supplemental Social Status False Cerebral Palsy Cerebral Palsy
C53714 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct count

Count of Code transmission number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53718 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct deviation from first count

Count of Code transmission total correct difference of the number of correctly identified targets from first (Version A) Code transmission total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53638 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score age scaled count

Count of Creature Counting timing score age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53632 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct age scaled count

Count of Creature Counting total correct age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53631 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct count

Count of Creature Counting total correct as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C58623 Number days week count

Count of days per week a stander used by the participant/subject

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C12663 Family history member with medical condition count

Count of family members with history of medical condition

 Supplemental Family History False Cerebral Palsy Cerebral Palsy
C53655 Test of Everyday Attention for Children (TEA-Ch) - Map mission age scaled count

Count of Mission Map age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53654 Test of Everyday Attention for Children (TEA-Ch) - Map mission count

Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Cerebral Palsy Cerebral Palsy
C53374 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score age scaled count

Count of Sky Search attention score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53230 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score count

Count of Sky Search attention score which is the TEAChSkySrchTimeTargetVal minus the number of correctly identified motor targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53648 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement age scaled count

Count of Sky Search dual task decrement age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53651 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53652 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53647 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement count

Count of Sky Search dual task decrement which is the value of the Sky Search DT Weighted time per target value minus the TEAChSkySrchTimeTargetVal (Sky Search time per target) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53217 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets count

Count of Sky Search number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53221 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation from first count

Count of Sky Search of difference of the number of correctly identified targets from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53222 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count

Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C53224 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value age scaled count

Count of Sky Search time per target age scaled score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
Displaying 76 - 100 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.