CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22658	C22658	Medical history bronchiectasis indicator	Indicator of whether the participant/subject has been diagnosed with brochiectasis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22656	C22656	Medical history bronchopulmonary dysplasia indicator	Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22662	C22662	Medical history recurrent lower respiratory tract infection indicator	Indicator of whether the participant/subject has been diagnosed with recurrent lower respiratory tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22657	C22657	Medical history recurrent pneumonia indicator	Indicator of whether the participant/subject has been diagnosed with recurrent pneumonia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22655	C22655	Medical history respiratory distress syndrome indicator	Indicator of whether the participant/subject has been diagnosed with respiratory distress syndrome	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2292-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59316	C59316	Surgery procedure achilles tendon lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59320	C59320	Surgery procedure anterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59364	C59364	Surgery procedure calcaneal osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle calcaneal osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59401	C59401	Surgery procedure first metatarsal osteotomy arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle first metatarsal osteotomy/arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59312	C59312	Surgery procedure gastrocnemius resection ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59360	C59360	Surgery procedure hindfoot arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59397	C59397	Surgery procedure midfoot osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle midfoot osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59348	C59348	Surgery procedure plantar fascia release ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle plantar fascia release surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59336	C59336	Surgery procedure posterior tibialis lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59328	C59328	Surgery procedure posterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59352	C59352	Surgery procedure tibial derotational osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59340	C59340	Surgery procedure toe flexor lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle toe flexor lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3052-C59306	C59306	Surgery procedure arthroplasty hip perform indicator	Indicator of whether the participant/subject has undergone the arthroplasty surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59249	C59249	Surgery procedure adductor lengthen hip perform indicator	Indicator of whether the participant/subject has undergone the hip adductor lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59274	C59274	Surgery procedure hip femoral derotation osteotomy perform indicator	Indicator of whether the participant/subject has undergone the hip femoral derotation osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59294	C59294	Surgery procedure hip open reduction perform indicator	Indicator of whether the participant/subject has undergone the hip open reduction surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59288	C59288	Surgery procedure hip pelvic osteotomy perform indicator	Indicator of whether the participant/subject has undergone the hip pelvic osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59300	C59300	Surgery procedure proximal femoral resection hip perform indicator	Indicator of whether the participant/subject has undergone the hip proximal femoral resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59262	C59262	Surgery procedure psoas lengthen hip perform indicator	Indicator of whether the participant/subject has undergone the hip psoas lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.