CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 276 - 300 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22674	C22674	Medical history obsessive compulsive disorder indicator	Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22677	C22677	Medical history self injurious behavior disorder	Indicator of whether participant/subject has self-injurious behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22672	C22672	Medical history behavior difficulty indicator	Indicator of whether participant/subject has/had behavior difficulties	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22669	C22669	Medical history recurrent urinary tract infect	Indicator of whether participant/subject has/had recurrent urinary tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F1046-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2207-C12680	C12680	Hospitalization non-surgical elective indicator	Indicator of whether the enumerated non-surgical hospitalization was elective	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12803	C12803	Gene variant mutation implications confirmed mRNA analysis indicator	Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2203-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22661	C22661	Medical history laryngomalacia indicator	Indicator of whether the participant has been diagnosed with layrngomalacia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22659	C22659	Medical history restrictive airway disease indicator	Indicator of whether the participant has been diagnosed with restrictive airway disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22660	C22660	Medical history tracheomalcia indicator	Indicator of whether the participant has been diagnosed with tracheomalacia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2204-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2292-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2203-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22650	C22650	Medical history conductive impairment indicator	Indicator of whether the participant/subject has been affected by conductive impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22647	C22647	Medical history high myopia indicator	Indicator of whether the participant/subject has been affected by high myopia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22648	C22648	Medical history optic neuropathy indicator	Indicator of whether the participant/subject has been affected by optic neuropathy	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22652	C22652	Medical history recurrent ear infection indicator	Indicator of whether the participant/subject has been affected by recurrent ear infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22646	C22646	Medical history retinopathy of prematurity indicator	Indicator of whether the participant/subject has been affected by Retinopathy of prematurity	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22651	C22651	Medical history sensori-neural indicator	Indicator of whether the participant/subject has been affected by sensori-neural impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

Displaying 276 - 300 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.