CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2292-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2292-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2292-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2292-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2293-C12658	C12658	Clinical event or milestone achieved age value	Age when the participant/subject achieved the clinical event or milestone	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14446	C14446	Muscle strength assessment anatomic site	Anatomic location of the muscle strength as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14443	C14443	Muscle tone assessment anatomic site	Anatomic location of the muscle tone as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C19836	C19836	Pain anatomic site text	Anatomic Site of body pain	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59367	C59367	Surgery procedure calcaneal osteotomy left ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59396	C59396	Surgery procedure calcaneal osteotomy right ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59403	C59403	Surgery procedure first metatarsal osteotomy arthrodesis left ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59404	C59404	Surgery procedure first metatarsal osteotomy arthrodesis right ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59362	C59362	Surgery procedure hindfoot arthrodesis left ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59363	C59363	Surgery procedure hindfoot arthrodesis right ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59399	C59399	Surgery procedure midfoot osteotomy left ankle anatomic site	Anatomic site of midfoot osteotomy surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59400	C59400	Surgery procedure midfoot osteotomy right ankle anatomic site	Anatomic site of midfoot osteotomy surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59324	C59324	Surgery procedure anterior tibialis tendon transfer left ankle complete anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59323	C59323	Surgery procedure anterior tibialis tendon transfer left ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59327	C59327	Surgery procedure anterior tibialis tendon transfer right ankle complete anatomic site	Anatomic site of the anterior tibialis tendon transfer right ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59326	C59326	Surgery procedure anterior tibialis tendon transfer right ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer right ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58485	C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58481	C58481	Dynamic upper extremity orthosis splint use anatomic site	Anatomic site of the dynamic upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.