CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Cerebral Palsy Cerebral Palsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Cerebral Palsy Cerebral Palsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Cerebral Palsy Cerebral Palsy
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Cerebral Palsy Cerebral Palsy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Cerebral Palsy Cerebral Palsy
C59403 Surgery procedure first metatarsal osteotomy arthrodesis left ankle type

Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59338 Surgery procedure posterior tibialis lengthen left ankle type

Type of posterior tibialis lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59346 Surgery procedure toe flexor lengthen tenotomy left ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59354 Surgery procedure tibial derotational osteotomy external ankle laterality type

Laterality type relative to the ankle surgical tibial derotational osteotomy external procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59314 Surgery procedure gastrocnemius resection left ankle type

Type of gastrocnemius resection surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59362 Surgery procedure hindfoot arthrodesis left ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59322 Surgery procedure anterior tibialis tendon transfer left ankle type

Type of anterior tibialis tendon transfer surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59397 Surgery procedure midfoot osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle midfoot osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59330 Surgery procedure posterior tibialis tendon transfer left ankle type

Type of posterior tibialis tendon transfer surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59404 Surgery procedure first metatarsal osteotomy arthrodesis right ankle type

Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59339 Surgery procedure posterior tibialis lengthen right ankle type

Type of posterior tibialis lengthening surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59347 Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59355 Surgery procedure tibial derotational osteotomy external left ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59315 Surgery procedure gastrocnemius resection right ankle type

Type of gastrocnemius resection surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C59363 Surgery procedure hindfoot arthrodesis right ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 201 - 225 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.