CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58508 Dedicate speech generating device manufacturer name

Name of manufacturer of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58568 Dynamic upper extremity orthosis splint use anatomic site laterality type

Laterality type of dynamic upper extremity orthosis splints anatomic site used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58478 Orthoses type

Type for all orthoses currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58486 Static lower extremity stretch orthosis splint use frequency type

Frequency type with which the participant/subject uses their static lower extremity stretching orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C12684 Mobility device type use indicator

Indicator whether the participant/subject currently uses the selected types of mobility device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58470 Transfer transportation device use indicator

Indicator of whether the participant/subject uses any transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58569 Static upper extremity orthosis splint frequency use laterality type

Laterality type of static upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58578 Eat drink assistive device type other text

Text describing the presence of any other eating / drinking device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58509 Dedicate speech generating device name

Name of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58479 Orthosis laterality type

Laterality type of orthoses used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58487 Static lower extremity stretch orthosis splint use anatomic site

Anatomic site of the static lower extremity stretching orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C12686 Orthosis type use indicator

Indicator whether the participant/subject currently uses the selected types of orthosis

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58471 ADL device use indicator

Indicator of whether the participant/subject uses any ADL (activities of daily living) devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Cerebral Palsy Cerebral Palsy
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Family History Cerebral Palsy Cerebral Palsy
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Core Family History Cerebral Palsy Cerebral Palsy
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Cerebral Palsy Cerebral Palsy
C10813 Adopted indicator

Indicator of whether the participant was adopted

Core Family History Cerebral Palsy Cerebral Palsy
C12663 Family history member with medical condition count

Count of family members with history of medical condition

Supplemental Family History Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Family History Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.