CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C58631	Position device type use indicator	Indicator whether the participant/subject currently uses the selected types of positioning devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58497	Transfer transportation device type	Type for all transfer/transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58505	Speak communication device type other text	Text describing the presence of any other type of speaking communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58513	Access communication device type other text	Text describing the presence of any other type of access communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58573	Static lower extremity stretch orthosis splint frequency use laterality type	Laterality type of static lower extremity stretching orthosis splints frequency used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58620	Truncal support device type other text	Text describing the presence of any other truncal support device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58489	Seat lie position device type	Type of seated or lying position device currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C12679	Mobility device use indicator	Whether the participant/subject uses a mobility device (e.g., wheelchair)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58475	Mobility device use location type	Use location type where the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58483	Static upper extremity orthosis splint use anatomic site	Anatomic site of the static upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58632	Access communication device type another body part specify text	Text describing the presence of another body part for type of access communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58498	Transfer transportation device type other text	Text describing the presence of any other transfer/transportation device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58506	IPAD application text	Text describing the type of iPad application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58566	Orthosis type other text	Text describing the presence of any other orthotic device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58574	Static lower extremity stretch orthosis splint use anatomic site laterality type	Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58621	Stand time use type	Type stand time used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58490	Position device type other text	Text describing the presence of any other positioning device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C12682	Orthosis use indicator	Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C56953	Cane stick use type	Type of cane which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58476	Mobility device use location type other text	Text describing the presence of any other mobility device location use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58484	Dynamic lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58491	Activity daily living device type	Type for all activity of daily living devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58499	Transfer device type	Type for all transfer devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C58507	Android application text	Text describing the type of Android application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.