CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22586 Maternal birth date

Date (and time, if applicable and known) the mother of the participant/subject was born

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Cerebral Palsy Cerebral Palsy
C22587 Paternal birth date

Date (and time, if applicable and known) the father of the participant/subject was born

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C00005 Birth country name

Name for country where the participant/subject was born

Core Demographics Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Demographics Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Demographics Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Demographics Cerebral Palsy Cerebral Palsy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Cerebral Palsy Cerebral Palsy
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Core Demographics Cerebral Palsy Cerebral Palsy
C58578 Eat drink assistive device type other text

Text describing the presence of any other eating / drinking device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58509 Dedicate speech generating device name

Name of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58569 Static upper extremity orthosis splint frequency use laterality type

Laterality type of static upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C12673 Position device use indicator

Indicator of whether the participant/subject uses any positioning devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C56951 Walker use type

Type of walker which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58474 Mobility device use distance type

Distance use type with which the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58482 Static upper extremity orthosis splint use frequency type

Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58617 Mobility device use propel type

Propel type the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58625 Communication device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58494 Bath device type other text

Text describing the presence of any other bathing device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58502 Communication devices category type

Type of category for all communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
Displaying 76 - 100 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.