CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3052-C59291	C59291	Surgery procedure pelvic osteotomy right hip perform type	Type of the surgical pelvic osteotomy procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1968-C56417	C56417	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale 2 T score sum value	The sum of two of the subject's T scores (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3049-C59434	C59434	Passive range motion knee joint right side flexion measurement value	Value of the right side knee joint flexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2016-C56340	C56340	NIH Toolbox Cognitive Picture sequence memory age 3 up raw score	The raw score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2290-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3052-C59251	C59251	Surgery procedure adductor lengthen percutaneous hip laterality type	Laterality type relative to the hip percutaneous surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2015-C53651	C53651	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2202-C22621	C22621	Pain scale type	The type of pain scale used to measure the patient or client's pain	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F1305-C14693	C14693	Berg Balance Scale (BBS) - sit stand scale	The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2289-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2293-C17493	C17493	Attention deficit disorder attention deficit hyperactivity disorder indicator	Indicator as to whether the participant/subject has or had attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2201-C14288	C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53624	C53624	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score deviation excess five percent cutoff count	Count of the Sky Search attention score difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2291-C14455	C14455	Cerebellar or coordination assessment abnormality present status	Whether the cerebellar/coordination assessment found abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2691-C58497	C58497	Transfer transportation device type	Type for all transfer/transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2203-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F3051-C59351	C59351	Surgery procedure plantar fascia release right ankle type	Type of plantar fascia release surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2292-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2308-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09578	C09578	Brief Pain Inventory (BPI) - least pain rating scale	Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2203-C22653	C22653	Medical history respiratory support indicator	Indicator of whether the participant/subject utilizes respiratory support/ventilation assist	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59242	C59242	Surgical procedure orthopedic ankle type	Type of orthopedic surgical procedure of the ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22624	C22624	Face Legs Activity Cry Consolability (FLACC) - Face score	The score of the face portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.