CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C22879	C22879	Imaging brain other atrophy diagnosis indicator	The indicator related to brain other region atrophy being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58658	C58658	Monoplegia laterality type	Monoplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56309	C56309	NIH Toolbox Cognitive Flanker inhibitory control and attention age 3 up raw score	The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17474	C17474	Cardiovascular history cardiac surgery indicator	Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53710	C53710	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time percentage value	Value of the Opposite Worlds Opposite World total time percentile band value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59304	C59304	Surgery procedure proximal femoral resection left hip anatomic site other text	The free-text field related to "Surgery procedure proximal femoral resection left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1968-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3049-C59451	C59451	Passive range motion ankle joint right side knee extend dorsiflexion measurement value	Value of the right side ankle joint dorsiflexion with knee extended passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59264	C59264	Surgery procedure psoas lengthen percutaneous hip laterality type	Laterality type relative to the hip surgical psoas lengthening percutaneous procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1046-C17889	C17889	Gene missense nonsense variant point mutation location exon text	The free-text field about missense/nonsense variant or point mutation at the exon	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1968-C56439	C56439	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56319	C56319	NIH Toolbox Cognitive List scoring working memory age 7 up computed score	The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3051-C59356	C59356	Surgery procedure tibial derotational osteotomy external right ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09583	C09583	Brief Pain Inventory (BPI) - pain general activity interference scale	Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2291-C22889	C22889	Sensory system abnormality symptom description text	Text representing the patient's description of his/her abnormal symptoms in his/her sensory system	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59316	C59316	Surgery procedure achilles tendon lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58510	C58510	Nonspeak communication device type	Type for all non-speaking communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.