CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C22882	C22882	Imaging brain mineralization diagnosis indicator	The indicator related to brain mineralization being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2295-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2201-C22617	C22617	Other physician follow-up care indicator	Indicator for follow-up care from another kind of physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1046-C12807	C12807	Gene second disease allele indicator	Indicator of whether a second disease allele was identified	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2235-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22638	C22638	Speech language pathology focus area environment factor intervention type	The type of intervention used for environmental factors as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3054-C59191	C59191	Gait profile score barefoot condition overall value	Value of the clinical index, Gait Profile Score (GPS), that is used to describe the overall gait pathology in the barefoot condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53218	C53218	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets age scaled count	Count of the Sky Search age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56315	C56315	NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3050-C59221	C59221	Surgery procedure hamstring lengthen knee perform type	Type of knee hamstring lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2060-C20827	C20827	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale	The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2691-C58482	C58482	Static upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59283	C59283	Surgery procedure varus derotational osteotomy proximal femur right hip neck shaft angle value	Value of the varus derotational osteotomy proximal femur right neck shaft angle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1968-C56409	C56409	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score	The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53714	C53714	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct count	Count of Code transmission number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3049-C59419	C59419	Passive range motion hip joint left side external rotation measurement value	Value of the left side hip joint external rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2016-C56329	C56329	NIH Toolbox Cognitive - Dimensional change card sort age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Dimensional Change Card Sort Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2289-C22914	C22914	Ventricular dilatation third ventricle qualitative assessment status	The status related to qualitative assessment of third ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2295-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F3051-C59400	C59400	Surgery procedure midfoot osteotomy right ankle anatomic site	Anatomic site of midfoot osteotomy surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2202-C22598	C22598	Therapist count	The number of therapists participating in the treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F1046-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2235-C54622	C54622	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result 90 percent confidence interval low bound value	Value of the lower bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2201-C05133	C05133	Therapy or rehabilitation session duration	Average duration of a therapy or rehabilitation session	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53226	C53226	Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value B score	Score of the Sky Search time per target B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.