CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C54616 Brief Test of Executive Function Adult Version (BRIEF A) - Form version name

Name of the form version used, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C14439 Motor exam global assessment abnormality type

Global assessment abnormality type found during the motor exam

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C53716 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct percentage value

Value of the Code transmission total correct percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12818 Gene second allele identical indicator

Indicator of whether allele #2 is identical to allele #1

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53641 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score deviation from first count

Count of the Creature Counting timing score difference from First (Version A) Creature Counting timing score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59363 Surgery procedure hindfoot arthrodesis right ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22848 Modified Ashworth Scale - Limb tone testing left shoulder muscle movement type

The type of the muscle movement of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C56997 Neonatal brain injury pattern classification

The National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59323 Surgery procedure anterior tibialis tendon transfer left ankle split anatomic site

Anatomic site of the anterior tibialis tendon transfer left ankle split surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C58569 Static upper extremity orthosis splint frequency use laterality type

Laterality type of static upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54628 Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale protocol classification category

Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C14447 Muscle strength abnormality assessment indicator

Whether the muscle strength assessment found any abnormalities

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C56281 NIH Toolbox Cognitive – Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53654 Test of Everyday Attention for Children (TEA-Ch) - Map mission count

Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59398 Surgery procedure midfoot osteotomy ankle laterality type

Laterality type relative to the ankle surgical midfoot osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22856 Modified Ashworth Scale - Limb tone testing left hip muscle movement type

The type of the muscle movement of limb tone testing for the left hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C22598 Therapist count

The number of therapists participating in the treatment session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.