CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22601 Therapy participant other text

Text describing the any other people participating in the therapy session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56291 NIH Toolbox Cognitive – Cognition early childhood composite unadjusted scale score

The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C14543 Genetic disorder type

Whether the participant/subject has a known single gene disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C14697 Berg Balance Scale (BBS) - transfer scale

The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53669 Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation from first count

Count of the Score dual task difference from First (Version A) Score dual task count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12786 Allele identifier

Identifies which allele the associated data describe

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C58487 Static lower extremity stretch orthosis splint use anatomic site

Anatomic site of the static lower extremity stretching orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59288 Surgery procedure hip pelvic osteotomy perform indicator

Indicator of whether the participant/subject has undergone the hip pelvic osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59425 Passive range motion hip joint right side adduction measurement value

Value of the right side hip joint adduction passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22651 Medical history sensori-neural indicator

Indicator of whether the participant/subject has been affected by sensori-neural impairment

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59039 Surgical procedure orthopedic hip type

Type of orthopedic surgical hip procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22622 Wong-Baker FACES - Pain rating scale

This scale uses faces and corresponding numbers to indicate the amount of pain the subject feels

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22870 Imaging brain abnormal indicator

The indicator related to brain abnormalities as seen on imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C56299 NIH Toolbox Cognitive – Cognition total composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17466 Cardiovascular history arrhythmia atrial fibrillation indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53702 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time value

Value of the total time (seconds) taken to complete the Same World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12794 Gene promoter deletion indicator

Whether known gene promoters were deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59296 Surgery procedure open reduction left hip perform type

Type of the surgical open reduction procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59443 Passive range motion knee joint left side Ely Test measurement value

Value of the left side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
Displaying 126 - 150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.