CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2292-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59320	C59320	Surgery procedure anterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C06025	C06025	Surgical or therapeutic procedure performed indicator	Indicator whether the participant/subject has undergone the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58566	C58566	Orthosis type other text	Text describing the presence of any other orthotic device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22678	C22678	Medical history aggressive behavior disorder indicator	Indicator of whether participant/subject has aggressive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53219	C53219	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets percentage value	Value of the Sky Search percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56334	C56334	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up computed score	The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56410	C56410	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score	The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59392	C59392	Surgery procedure calcaneal osteotomy right ankle type	Type of calcaneal osteotomy surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22853	C22853	Modified Ashworth Scale - Limb tone testing right fingers muscle movement type	The type of the muscle movement of limb tone testing for the right fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3051-C59328	C59328	Surgery procedure posterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C12681	C12681	Hospitalization non-surgical ventilation indicator	Indicator of whether the participant/subject was ventilated while in the hospital for the specified non-surgical reason	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58574	C58574	Static lower extremity stretch orthosis splint use anatomic site laterality type	Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22896	C22896	Occupational therapy focus area minute time	The time in minutes as related to the areas of focus in occupational therapy	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14456	C14456	Cerebellar or coordination assessment abnormality present type	Type of abnormality found by the cerebellar/coordination assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2204-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F2201-C14293	C14293	Durable medical equipment type	If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53227	C53227	Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value deviation from first count	Count of the Sky Search time per target difference from First (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56344	C56344	NIH Toolbox Cognitive Picture sequence memory age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56418	C56418	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid type	The type of visual or hearing aid or aids that the examinee needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59336	C59336	Surgery procedure posterior tibialis lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.