CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1126 - 1150 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56281 NIH Toolbox Cognitive – Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53654 Test of Everyday Attention for Children (TEA-Ch) - Map mission count

Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59188 Triradiate cartilage status

Status of closure of the triradiate cartilage

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C59216 Surgery procedure distal femoral extension osteotomy left knee type

Type of distal femoral extension osteotomy surgical procedure performed on the left knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58477 Cane stick use laterality type

Laterality type with which the participant/subject uses their cane/stick

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59278 Surgery procedure femoral derotation osteotomy left hip anatomic site other text

The free-text field related to "Surgery procedure femoral derotation osteotomy left hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22598 Therapist count

The number of therapists participating in the treatment session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59409 Passive range motion hip joint right side extension measurement value

Value of the right side hip joint extension passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C19769 Medical history pulmonary aspiration diagnosis indicator

Indicator of history of aspiration

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22599 Therapy participant family caregiver count

The number of family members and/or caregivers participating in the treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56289 NIH Toolbox Cognitive – Cognition early childhood composite raw score

The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C14130 Seizure focal classification type

The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53666 Test of Everyday Attention for Children (TEA-Ch) - Score dual task percentage value

Value of the Score dual task Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59224 Surgery procedure hamstring lengthen percutaneous right knee anatomic site

Anatomic site of the surgical hamstring lengthening percutaneous procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58485 Dynamic lower extremity stretch orthosis splint use anatomic site

Anatomic site of the dynamic lower extremity stretching orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59281 Surgery procedure varus derotational osteotomy proximal femur hip laterality type

Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59310 Surgery procedure arthroplasty left hip perform type other text

The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59286 Surgery procedure varus derotational osteotomy proximal femur left hip type other text

The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur left hip type" specifying other text.

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C08515 36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator

Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08523 36-item Short Form Health Survey (SF-36) - Times pep score

Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
Displaying 1126 - 1150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.