CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3051-C59312	C59312	Surgery procedure gastrocnemius resection ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C08668	C08668	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator	Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58506	C58506	IPAD application text	Text describing the type of iPad application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14435	C14435	Nystagmus indicator	Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20820	C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22670	C22670	Medical history Perinatal neurological event indicator	Indicator of whether participant had a perinatal neurological event	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22641	C22641	Speech language pathology focus area leisure community intervention type	The type of intervention used for leisure and/or community as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56323	C56323	NIH Toolbox Cognitive List scoring working memory age 7 up fully adjusted scale score	The fully adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59360	C59360	Surgery procedure hindfoot arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22845	C22845	Modified Ashworth Scale - Limb tone testing right toes scale	The scale of limb tone testing for the right toes, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09587	C09587	Brief Pain Inventory (BPI) - pain relations interference scale	Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59320	C59320	Surgery procedure anterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C06025	C06025	Surgical or therapeutic procedure performed indicator	Indicator whether the participant/subject has undergone the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58566	C58566	Orthosis type other text	Text describing the presence of any other orthotic device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22678	C22678	Medical history aggressive behavior disorder indicator	Indicator of whether participant/subject has aggressive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53219	C53219	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets percentage value	Value of the Sky Search percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56334	C56334	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up computed score	The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3049-C59408	C59408	Passive range motion hip joint left side extension measurement value	Value of the left side hip joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.