CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1026 - 1050 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59338 Surgery procedure posterior tibialis lengthen left ankle type

Type of posterior tibialis lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22596 Therapy setting type

The setting related to therapy session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C52422 Surgical history procedure neurological surgery type

Type of neurological surgery procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58623 Number days week count

Count of days per week a stander used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59201 Gait profile score orthotic condition left value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the left side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C18503 Assessment unable text

The free-text field to explain why there was no assessment of nystagmus performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59231 Surgery procedure hamstring lengthen open right knee anatomic site other text

The free-text field related to "Surgery procedure hamstring lengthen open right knee anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C22782 Risk Factor Questionnaire (RFQ) - age 2-5 moderate physical activity indicator

Hours spent doing moderate physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58492 Bath device type

Type for all bathing devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C56279 NIH Toolbox Cognitive – Cognition crystallized composite unadjusted scale score

The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22606 Therapy rehabilitation location type

The location where the participant/subject received their rehabilitation therapy

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22905 Physcial therapy minute duration

The duration in minutes related to physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53651 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C53636 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation excess five percent cutoff count

Count of the Creature Counting total correct difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56438 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score

The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59346 Surgery procedure toe flexor lengthen tenotomy left ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22604 Therapy consultative frequency

The consultative frequency (less than once a month) of the patient or client's treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22058 Modified Ashworth Scale - Limb tone testing right shoulder scale

The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C18944 Reflex exam global assessment other text

The free-text field related to 'Reflex exam global assessment result' specifying other text. The global assessment of the ability and condition of reflexes

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59239 Surgery procedure rectus femoris release transfer knee laterality type

Laterality type relative to the knee surgical rectus femoris release/transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C08662 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence city text

Text specifying the participant's/subject's first city or town of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C56287 NIH Toolbox Cognitive – Cognition fluid composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
Displaying 1026 - 1050 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.