CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C22913	C22913	Ventricular dilatation right lateral qualitative assessment status	The status related to qualitative assessment of right lateral ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58669	C58669	Visual impairment indicator	Indicator of whether participant has visual impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17485	C17485	Psychiatric history clinical depression past year indicator	Indicator as to whether the participant/subject has had clinical depression within the last year	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56281	C56281	NIH Toolbox Cognitive Cognition crystallized composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2198-C22588	C22588	Location post-acute discharge type	Indicates the participant's/ subject's current location after discharge from the acute hospital	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C54620	C54620	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result percentage value	Percentile value of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59358	C59358	Surgery procedure tibial derotational osteotomy internal left ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22843	C22843	Modified Ashworth Scale - Limb tone testing right fingers scale	The scale of limb tone testing for the right fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F1046-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3042-C09585	C09585	Brief Pain Inventory (BPI) - pain walking ability interference scale	Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59318	C59318	Surgery procedure achilles tendon lengthen left ankle type	Type of achilles tendon lengthening surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53225	C53225	Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value percentage value	Value of the Sky Search time per target percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2207-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58512	C58512	Access communication device type	Type for all access communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2060-C20835	C20835	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale	The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2202-C22599	C22599	Therapy participant family caregiver count	The number of family members and/or caregivers participating in the treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14442	C14442	Muscle bulk assessment abnormality type	The muscle bulk abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1968-C56416	C56416	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale 4 T score sum value	The sum of all four of the subject's T scores, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2203-C22676	C22676	Medical history disruptive behavior disorder indicator	Indicator of whether participant/subject has disruptive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2016-C56336	C56336	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2201-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F3051-C59366	C59366	Surgery procedure calcaneal osteotomy left ankle type	Type of calcaneal osteotomy surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22851	C22851	Modified Ashworth Scale - Limb tone testing right wrist muscle movement type	The type of the muscle movement of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.