CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1001 - 1025 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22598 Therapist count

The number of therapists participating in the treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56288 NIH Toolbox Cognitive – Cognition fluid composite fully adjusted scale score

The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C14127 Seizure generalized classification type

The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as ortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53664 Test of Everyday Attention for Children (TEA-Ch) - Score dual task age scaled count

Count of the Score dual task age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59223 Surgery procedure hamstring lengthen percutaneous left knee anatomic site

Anatomic site of the surgical hamstring lengthening percutaneous procedure performed on the left knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58484 Dynamic lower extremity stretch orthosis splint use frequency type

Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59285 Surgery procedure varus derotational osteotomy proximal femur right hip type

Type of the surgical varus derotational osteotomy proximal femur procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22620 Child Effort Rating - Overall scale

The scale representing the overall rating for "Child Effort" across the entire session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59422 Passive range motion hip joint left side abduction measurement value

Value of the left side hip joint abduction passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C56419 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text

Text describing another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59337 Surgery procedure posterior tibialis lengthen ankle laterality type

Laterality type relative to the ankle surgical posterior tibialis lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58622 Number minutes day duration

Duration in minutes per day a stander used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59200 Gait profile score orthotic condition overall value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the overall gait pathology in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C14469 Sensory system modalities affected type

The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59230 Surgery procedure hamstring lengthen open left knee anatomic site other text

The free-text field related to "Surgery procedure hamstring lengthen open left knee anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22781 Risk Factor Questionnaire (RFQ) - ages 2-5 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58491 Activity daily living device type

Type for all activity of daily living devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22605 Therapy rehabilitation service type

The type of rehabilitation therapy service received by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53626 Test of Everyday Attention for Children (TEA-Ch) - Score age scaled count

Count of the Score! Age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C56427 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval lower bound value

The lower bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
Displaying 1001 - 1025 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.