CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2060-C20811	C20811	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep satisfaction assessment past week scale	The scale which represents how often the participant was satisfied with his/her sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22661	C22661	Medical history laryngomalacia indicator	Indicator of whether the participant has been diagnosed with layrngomalacia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56434	C56434	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score	The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59351	C59351	Surgery procedure plantar fascia release right ankle type	Type of plantar fascia release surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09578	C09578	Brief Pain Inventory (BPI) - least pain rating scale	Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2291-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59242	C59242	Surgical procedure orthopedic ankle type	Type of orthopedic surgical procedure of the ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C08667	C08667	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence well water indicator	Indicator as to whether the participant's/subject's source of drinking water was a private well at the first residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58505	C58505	Speak communication device type other text	Text describing the presence of any other type of speaking communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14434	C14434	Cranial nerve abnormal identifier type	The identified cranial nerve that assessed as abnormal	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20819	C20819	Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale	The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22669	C22669	Medical history recurrent urinary tract infect	Indicator of whether participant/subject has/had recurrent urinary tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22640	C22640	Speech language pathology focus area home intervention type	The type of intervention used for home as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C56444	C56444	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score	The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56322	C56322	NIH Toolbox Cognitive - List scoring working memory age 7 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59359	C59359	Surgery procedure tibial derotational osteotomy internal right ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2016-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C10522	C10522	Speech affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's speech	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53651	C53651	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3053-C59186	C59186	Pelvic obliquity left measurement	The measurement in degrees of the left pelvic obliquity	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59214	C59214	Surgery procedure distal femoral extension osteotomy knee perform indicator	Indicator of whether the participant/subject has undergone the knee distal femoral extension osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.