CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17460 Cancer history indicator

Indicator as to whether the participant/subject has or had cancer

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C22887 Gait oxygen cost walking value

The metabolic cost of steady-state walking value (mL/kg/m)

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53671 Test of Everyday Attention for Children (TEA-Ch) - Walk don't walk count

Count of total correct on the Walk, Don't Walk as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59314 Surgery procedure gastrocnemius resection left ankle type

Type of gastrocnemius resection surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08670 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58508 Dedicate speech generating device manufacturer name

Name of manufacturer of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C12788 Gene exon copy number tested indicator

Whether the copy number was directly tested for all exons

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C14438 Motor exam global abnormality present indicator

Global assessment whether an abnormality was present following the motor exam

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C22672 Medical history behavior difficulty indicator

Indicator of whether participant/subject has/had behavior difficulties

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22653 Medical history respiratory support indicator

Indicator of whether the participant/subject utilizes respiratory support/ventilation assist

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22624 Face Legs Activity Cry Consolability (FLACC) - Face score

The score of the face portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56301 NIH Toolbox Cognitive – Picture vocabulary age 3 up raw score

The raw score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59362 Surgery procedure hindfoot arthrodesis left ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C17468 Cardiovascular history arrhythmia bradycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of bradycardia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22847 Modified Ashworth Scale - Limb tone testing right shoulder muscle movement type

The type of the muscle movement of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C53704 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time percentage value

Value of the Opposite Worlds Same World total time percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59322 Surgery procedure anterior tibialis tendon transfer left ankle type

Type of anterior tibialis tendon transfer surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.