CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22614 Home medical equipment other text

The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C11026 Neuromuscular Exam Muscle weakness indicator

Indicator whether there is muscle weakness in the muscle or muscle group examined

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53635 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation from first count

Count of the Creature Counting total correct difference from First (Version A) Creature Counting total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20814 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep problem assessment past week scale

The scale which represents how often the participant had a problem with sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22664 Medical history delayed gastric empty indicator

Indicator of whether the participant/subject has/had delayed gastric emptying

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22635 Speech language pathology focus area swallow dysphagia oral feed intervention type

The type of intervention used for swallowing, dysphagia, and/or oral feeding as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56437 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval upper bound value

The upper bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59354 Surgery procedure tibial derotational osteotomy external ankle laterality type

Laterality type relative to the ankle surgical tibial derotational osteotomy external procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C22887 Gait oxygen cost walking value

The metabolic cost of steady-state walking value (mL/kg/m)

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59314 Surgery procedure gastrocnemius resection left ankle type

Type of gastrocnemius resection surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08670 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58508 Dedicate speech generating device manufacturer name

Name of manufacturer of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22595 Therapy session type

The type of session in which the patient or client received therapy

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14438 Motor exam global abnormality present indicator

Global assessment whether an abnormality was present following the motor exam

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20822 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale

The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22672 Medical history behavior difficulty indicator

Indicator of whether participant/subject has/had behavior difficulties

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22643 Speech language pathology focus area social participation intervention type

The type of intervention used for social participation as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56326 NIH Toolbox Cognitive – Dimensional change card sort age 3 up computed score

The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54629 Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score

Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.