CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2198-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2015-C53701	C53701	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation excess five percent cutoff coun	Count of the Walk, Don't Walk difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Cerebral Palsy	Cerebral Palsy
F1046-C12807	C12807	Gene second disease allele indicator	Indicator of whether a second disease allele was identified	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59295	C59295	Surgery procedure open reduction hip laterality type	Laterality type relative to the hip surgical open reduction procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59442	C59442	Passive range motion knee joint right side popliteal angle measurement value	Value of the right side knee joint popliteal angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22658	C22658	Medical history bronchiectasis indicator	Indicator of whether the participant/subject has been diagnosed with brochiectasis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59255	C59255	Surgery procedure adductor lengthen percutaneous right hip anatomic site other text	The free-text field related to "Surgery procedure adductor lengthen percutaneous right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22629	C22629	Therapy factor influence session type	The type of factor(s) that influenced the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22878	C22878	Imaging brain cerebral atrophy diagnosis indicator	The indicator related to brain cerebral atrophy being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58657	C58657	Hemiplegia laterality type	Hemiplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56308	C56308	NIH Toolbox Cognitive ? Picture vocabulary age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17498	C17498	Hand preference before 12 month age indicator	Indicator as to whether the participant/subject had a hand preference before 12 months of age	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53709	C53709	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time age scaled value	Value of the Opposite Worlds Opposite World total time age scaled value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C05460	C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2308-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59240	C59240	Surgery procedure rectus femoris release transfer left knee type	Type of surgical rectus femoris tendon procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2206-C08663	C08663	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text	Text specifying the participant's/subject's first state of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58501	C58501	Transportation device type	Type for all transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22615	C22615	Rehabilitation physician follow-up care indicator	Indicator for follow-up care from a rehabilitation care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2291-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.