CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 926 - 950 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22666 Medical history oropharyngeal dysphagia indicator

Indicator of whether the participant/subject has/had oropharyngeal dysphagia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22637 Speech language pathology focus area augmentative alternative communication intervention type

The type of intervention used for augmentative and alternative communication (AAC) as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56319 NIH Toolbox Cognitive – List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59356 Surgery procedure tibial derotational osteotomy external right ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22106 Modified Ashworth Scale - Limb tone testing right ankle scale

The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C22889 Sensory system abnormality symptom description text

Text representing the patient's description of his/her abnormal symptoms in his/her sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59316 Surgery procedure achilles tendon lengthen ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58510 Nonspeak communication device type

Type for all non-speaking communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22597 Therapy participant count

The number of patients participating in the therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14440 Muscle bulk assessment anatomic site

Anatomic location of the muscle bulk exam as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22674 Medical history obsessive compulsive disorder indicator

Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59211 Surgery procedure anterior hemi epiphyseodesis left knee other text

The free-text field related to "Surgery procedure anterior hemi-epiphyseodesis left knee type" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58472 Communications device use indicator

Indicator of whether the participant/subject uses any communication devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59273 Surgery procedure psoas lengthen open right hip anatomic site other text

The free-text field related to "Surgery procedure psoas lengthen open right hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C15910 Assessment date and time

The date of participant's injury

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22594 Communication Function Classification System communication method used type

The type of communication method(s) used, given by the Communication Function Classification System (CFCS)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56284 NIH Toolbox Cognitive ? Cognition fluid composite computed score

The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

Supplemental Medical History Cerebral Palsy Cerebral Palsy
Displaying 926 - 950 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.