CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59313 Surgery procedure gastrocnemius resection ankle laterality type

Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C08669 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator

Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58507 Android application text

Text describing the type of Android application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14436 Nystagmus type

Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22671 Medical history abnormal sleep EEG indicator

Indicator of whether a participant/subject has/had an abnormal sleep EEG

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22642 Speech language pathology focus area education school intervention type

The type of intervention used for education and school as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56324 NIH Toolbox Cognitive – Dimensional change card sort age 3 up raw score

The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59361 Surgery procedure hindfoot arthrodesis ankle laterality type

Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22846 Modified Ashworth Scale - Limb tone testing left toes scale

The scale of limb tone testing for the left toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59321 Surgery procedure anterior tibialis tendon transfer ankle laterality type

Laterality type relative to the ankle surgical anterior tibialis tendon transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58567 Dynamic upper extremity orthosis splint frequency use laterality type

Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22604 Therapy consultative frequency

The consultative frequency (less than once a month) of the patient or client's treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14445 Muscle tone assessment abnormality type

The muscle tone abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C20832 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale

The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22679 Medical history first depressive episode diagnosis age value

Value of a participant's/subject's age when first depressive episode was diagnosed

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56335 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59396 Surgery procedure calcaneal osteotomy right ankle sliding anatomic site

Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22854 Modified Ashworth Scale - Limb tone testing left fingers muscle movement type

The type of the muscle movement of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
Displaying 901 - 925 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.