CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06192 Fecal incontinence past three month average frequency

Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12804 Gene cDNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59305 Surgery procedure proximal femoral resection right hip anatomic site other text

The free-text field related to "Surgery procedure proximal femoral resection right hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59452 Passive range motion ankle joint left side knee flex dorsiflexion measurement value

Value of the left side ankle joint dorsiflexion with knee flexed passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C18870 Mobility device other text

The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59265 Surgery procedure psoas lengthen percutaneous left hip anatomic site

Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22912 Ventricular dilatation left lateral qualitative assessment status

The status related to qualitative assessment of left lateral ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58668 Intellectual impairment type

Type of intellectual impairment of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17484 Psychiatric history clinical anxiety past year indicator

Indicator as to whether the participant/subject had clinical anxiety within the last year

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C54619 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result T score

T score of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C53719 Test of Everyday Attention for Children (TEA-Ch) - Speech disturbance global assessment result

The condition and ability of speech disturbance

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17890 Allele number one missense nonsense variant or point mutation subclass information type

Type of missense/nonsense variant or point mutation subclass information, first allele number one

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53648 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement age scaled count

Count of Sky Search dual task decrement age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59183 Acetabular index right measurement

The measurement in degrees of the right acetabular index

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C59211 Surgery procedure anterior hemi epiphyseodesis left knee other text

The free-text field related to "Surgery procedure anterior hemi-epiphyseodesis left knee type" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58472 Communications device use indicator

Indicator of whether the participant/subject uses any communication devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59273 Surgery procedure psoas lengthen open right hip anatomic site other text

The free-text field related to "Surgery procedure psoas lengthen open right hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C15910 Assessment date and time

The date of participant's injury

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22594 Communication Function Classification System communication method used type

The type of communication method(s) used, given by the Communication Function Classification System (CFCS)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
Displaying 76 - 100 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.