CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22651	C22651	Medical history sensori-neural indicator	Indicator of whether the participant/subject has been affected by sensori-neural impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59039	C59039	Surgical procedure orthopedic hip type	Type of orthopedic surgical hip procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22870	C22870	Imaging brain abnormal indicator	The indicator related to brain abnormalities as seen on imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17466	C17466	Cardiovascular history arrhythmia atrial fibrillation indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22621	C22621	Pain scale type	The type of pain scale used to measure the patient or client's pain	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56298	C56298	NIH Toolbox Cognitive Cognition total composition age adjusted scale score	The total composite age adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2198-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53701	C53701	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation excess five percent cutoff coun	Count of the Walk, Don't Walk difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12793	C12793	Gene exon predicted reading frame type	Type of predicted reading frame	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59296	C59296	Surgery procedure open reduction left hip perform type	Type of the surgical open reduction procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59443	C59443	Passive range motion knee joint left side Ely Test measurement value	Value of the left side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F3052-C59256	C59256	Surgery procedure adductor lengthen open hip laterality type	Laterality type relative to the hip open surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22879	C22879	Imaging brain other atrophy diagnosis indicator	The indicator related to brain other region atrophy being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58658	C58658	Monoplegia laterality type	Monoplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17474	C17474	Cardiovascular history cardiac surgery indicator	Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22629	C22629	Therapy factor influence session type	The type of factor(s) that influenced the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56308	C56308	NIH Toolbox Cognitive ? Picture vocabulary age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2015-C53709	C53709	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time age scaled value	Value of the Opposite Worlds Opposite World total time age scaled value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12802	C12802	Gene variant mutation mRNA analysis performed indicator	Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59304	C59304	Surgery procedure proximal femoral resection left hip anatomic site other text	The free-text field related to "Surgery procedure proximal femoral resection left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.