CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3049-C59453	C59453	Passive range motion ankle joint right side knee flex dorsiflexion measurement value	Value of the right side ankle joint dorsiflexion with knee flexed passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C18883	C18883	Orthosis other text	The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59266	C59266	Surgery procedure psoas lengthen percutaneous right hip anatomic site	Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22913	C22913	Ventricular dilatation right lateral qualitative assessment status	The status related to qualitative assessment of right lateral ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58669	C58669	Visual impairment indicator	Indicator of whether participant has visual impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17485	C17485	Psychiatric history clinical depression past year indicator	Indicator as to whether the participant/subject has had clinical depression within the last year	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C22588	C22588	Location post-acute discharge type	Indicates the participant's/ subject's current location after discharge from the acute hospital	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C54620	C54620	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result percentage value	Percentile value of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56277	C56277	NIH Toolbox Cognitive Cognition crystallized composite raw score	The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C10520	C10520	Vision affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's vision	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53649	C53649	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement percentage value	Value of the Sky Search dual task decrement percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22676	C22676	Medical history disruptive behavior disorder indicator	Indicator of whether participant/subject has disruptive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53217	C53217	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets count	Count of Sky Search number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56330	C56330	NIH Toolbox Cognitive Dimensional change card sort age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56408	C56408	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score	The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59366	C59366	Surgery procedure calcaneal osteotomy left ankle type	Type of calcaneal osteotomy surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22851	C22851	Modified Ashworth Scale - Limb tone testing right wrist muscle movement type	The type of the muscle movement of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59326	C59326	Surgery procedure anterior tibialis tendon transfer right ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer right ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C12678	C12678	Hospitalization non surgical total lifetime count	Count of the total number of times that the participant/subject has been hospitalized for a non-surgical reason	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58572	C58572	Dynamic lower extremity stretch orthosis splint use anatomic site laterality type	Laterality type of dynamic lower extremity stretching orthosis splints anatomic site used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.