CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22668	C22668	Medical history neurogenic detrusor indicator	Indicator of whether participant/subject has a neurogenic detrusor	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22639	C22639	Speech language pathology focus area assessment intervention type	The type of intervention used for assessments as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C56441	C56441	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval upper bound value	The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56321	C56321	NIH Toolbox Cognitive List scoring working memory age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59364	C59364	Surgery procedure calcaneal osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle calcaneal osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22849	C22849	Modified Ashworth Scale - Limb tone testing right elbow muscle movement type	The type of the muscle movement of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59324	C59324	Surgery procedure anterior tibialis tendon transfer left ankle complete anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2202-C22599	C22599	Therapy participant family caregiver count	The number of family members and/or caregivers participating in the treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2691-C58570	C58570	Static upper extremity orthosis splint use anatomic site laterality type	Laterality type of static upper extremity orthosis splints anatomic site used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2060-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2291-C14448	C14448	Muscle strength abnormality assessment type	The muscle strength abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22676	C22676	Medical history disruptive behavior disorder indicator	Indicator of whether participant/subject has disruptive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53217	C53217	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets count	Count of Sky Search number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56330	C56330	NIH Toolbox Cognitive Dimensional change card sort age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56408	C56408	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score	The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59399	C59399	Surgery procedure midfoot osteotomy left ankle anatomic site	Anatomic site of midfoot osteotomy surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22857	C22857	Modified Ashworth Scale - Limb tone testing right knee muscle movement type	The type of the muscle movement of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C12678	C12678	Hospitalization non surgical total lifetime count	Count of the total number of times that the participant/subject has been hospitalized for a non-surgical reason	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59332	C59332	Surgery procedure posterior tibialis tendon transfer left ankle complete anatomic site	Anatomic site of the posterior tibialis tendon transfer left ankle complete surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2202-C22629	C22629	Therapy factor influence session type	The type of factor(s) that influenced the treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.