CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2015-C53708	C53708	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time value	Value of the total time (seconds) taken to complete the Opposite World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59302	C59302	Surgery procedure proximal femoral resection left hip anatomic site	Anatomic site of the surgical proximal femoral resection procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59449	C59449	Passive range motion ankle joint type	Type of ankle joint passive range of motion	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59262	C59262	Surgery procedure psoas lengthen hip perform indicator	Indicator of whether the participant/subject has undergone the hip psoas lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22892	C22892	Corpus callosum agenesis status	The status related to agenesis (failure to develop) of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C17480	C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C54616	C54616	Brief Test of Executive Function Adult Version (BRIEF A) - Form version name	Name of the form version used, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F1968-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53716	C53716	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct percentage value	Value of the Code transmission total correct percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C10507	C10507	Genetic diagnosis confirmation type	Manner in which genetic diagnosis was confirmed	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12818	C12818	Gene second allele identical indicator	Indicator of whether allele #2 is identical to allele #1	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53641	C53641	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score deviation from first count	Count of the Creature Counting timing score difference from First (Version A) Creature Counting timing score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59208	C59208	Surgery procedure anterior hemi epiphyseodesis knee perform indicator	Indicator of whether the participant/subject has undergone the knee anterior hemi-epiphyseodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C56954	C56954	Dynamic upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59270	C59270	Surgery procedure open psoas lengthen left hip anatomic site	Anatomic site of the open surgical psoas lengthening procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C56997	C56997	Neonatal brain injury pattern classification	The National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2200-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54628	C54628	Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.