CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58631 Position device type use indicator

Indicator whether the participant/subject currently uses the selected types of positioning devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C00327 Prior traumatic injury indicator

Indicator of prior traumatic injury found either historically, previous emergency department visits, radiographic findings, or signs or symptoms at time of presentation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C18936 Muscle tone assessment abnormality other text

The free-text field related to 'Muscle tone assessment abnormality type' specifying other text. The muscle tone abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59236 Surgery procedure patellar tendon shorten advance left knee type

Type of the surgical patellar tendon shortening/advancement procedure performed on the left knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22787 Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58497 Transfer transportation device type

Type for all transfer/transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22611 Communication device other text

The free-text field related to 'Communication device type' specifying other text. Type for all communication devices the participant/subject currently uses

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22910 Physical therapy assistive technical device type

The type of assistive technical device as related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53632 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct age scaled count

Count of Creature Counting total correct age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20811 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep satisfaction assessment past week scale

The scale which represents how often the participant was satisfied with his/her sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22661 Medical history laryngomalacia indicator

Indicator of whether the participant has been diagnosed with layrngomalacia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56434 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score

The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59351 Surgery procedure plantar fascia release right ankle type

Type of plantar fascia release surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22101 Modified Ashworth Scale - Limb tone testing left wrist scale

The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59242 Surgical procedure orthopedic ankle type

Type of orthopedic surgical procedure of the ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08667 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence well water indicator

Indicator as to whether the participant's/subject's source of drinking water was a private well at the first residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58505 Speak communication device type other text

Text describing the presence of any other type of speaking communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C15910 Assessment date and time

The date of participant's injury

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14434 Cranial nerve abnormal identifier type

The identified cranial nerve that assessed as abnormal

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20819 Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale

The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22669 Medical history recurrent urinary tract infect

Indicator of whether participant/subject has/had recurrent urinary tract infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22640 Speech language pathology focus area home intervention type

The type of intervention used for home as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56444 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score

The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
Displaying 301 - 325 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.