CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53228 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value deviation excess five percent cutoff count

Count of the Sky Search time per target difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14443 Muscle tone assessment anatomic site

Anatomic location of the muscle tone as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20829 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale

The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22677 Medical history self injurious behavior disorder

Indicator of whether participant/subject has self-injurious behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59214 Surgery procedure distal femoral extension osteotomy knee perform indicator

Indicator of whether the participant/subject has undergone the knee distal femoral extension osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58475 Mobility device use location type

Use location type where the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59276 Surgery procedure femoral derotation osteotomy left hip anatomic site

Anatomic site of the surgical femoral derotation osteotomy procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22595 Therapy session type

The type of session in which the patient or client received therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C56297 NIH Toolbox Cognitive – Cognition total composition unadjusted scale score

The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59407 Passive range motion hip joint right side flexion measurement value

Value of the right side hip joint flexion passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C22597 Therapy participant count

The number of patients participating in the therapy session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C53700 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation from first count

Count of the Walk, don't Walk difference from First (Version A) Walk, Don't Walk total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C14126 Seizure classification type

The type of seizures present by classification

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59222 Surgery procedure hamstring lengthen percutaneous knee laterality type

Laterality type relative to the knee surgical hamstring lengthening percutaneous procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58483 Static upper extremity orthosis splint use anatomic site

Anatomic site of the static upper extremity orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59284 Surgery procedure varus derotational osteotomy proximal femur left hip type

Type of the surgical varus derotational osteotomy proximal femur procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22619 Therapy bill unit service value

The total units of service billed for the patient or client's therapy treatment session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59421 Passive range motion hip joint right side external rotation measurement value

Value of the right side hip joint external rotation passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22646 Medical history retinopathy of prematurity indicator

Indicator of whether the participant/subject has been affected by Retinopathy of prematurity

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12608 Respiratory pattern status

Assessment of the respiratory breathing pattern

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C59401 Surgery procedure first metatarsal osteotomy arthrodesis ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle first metatarsal osteotomy/arthrodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 251 - 275 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.