CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1046-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53629	C53629	Test of Everyday Attention for Children (TEA-Ch) - Score deviation from first count	Count of the Score! difference from First (Version A) Score! count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2201-C18913	C18913	Adjunctive treatment other text	The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1968-C56430	C56430	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value	The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59336	C59336	Surgery procedure posterior tibialis lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2060-C20808	C20808	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale	The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2207-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58621	C58621	Stand time use type	Type stand time used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59199	C59199	Gait deviation index orthotic condition score	Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the orthotic condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14467	C14467	Sensory system abnormality symmetry type	Symmetry of abnormality for sensory system results	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59229	C59229	Surgery procedure hamstring lengthen open right knee anatomic site	Anatomic site of the surgical hamstring lengthening open procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58490	C58490	Position device type other text	Text describing the presence of any other positioning device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1968-C00008	C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12818	C12818	Gene second allele identical indicator	Whether allele #2 is identical to allele #1	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2203-C22656	C22656	Medical history bronchopulmonary dysplasia indicator	Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59253	C59253	Surgery procedure adductor lengthen percutaneous right hip anatomic site	Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22876	C22876	Imaging brain edema diagnosis indicator	The indicator related to brain edema being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58655	C58655	Cerebral palsy distribution type	Type of condition distribution (spasticity subtype) experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17471	C17471	Cardiovascular history arrhythmia supraventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2208-C22792	C22792	Vaccines received indicator	Indicates whether participant/subject received the vaccine	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22631	C22631	Speech language pathology focus area speech production intervention type	The type of intervention used for speech production as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56305	C56305	NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2198-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2015-C53708	C53708	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time value	Value of the total time (seconds) taken to complete the Opposite World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.