CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58499 Transfer device type

Type for all transfer devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53634 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct B score

Score of Creature Counting total correct B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22663 Medical history gastroesophageal reflux disease (GERD) indicator

Indicator of whether the participant/subject has/had gastroesophageal reflux disease

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22634 Speech language pathology focus area language social pragmatic intervention type

The type of intervention used for social language and pragmatics as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56436 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59353 Surgery procedure tibial derotational osteotomy ankle perform type

Type of ankle tibial derotational osteotomy surgical procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59313 Surgery procedure gastrocnemius resection ankle laterality type

Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08669 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator

Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58507 Android application text

Text describing the type of Android application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59208 Surgery procedure anterior hemi epiphyseodesis knee perform indicator

Indicator of whether the participant/subject has undergone the knee anterior hemi-epiphyseodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C56954 Dynamic upper extremity orthosis splint use frequency type

Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59270 Surgery procedure open psoas lengthen left hip anatomic site

Anatomic site of the open surgical psoas lengthening procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56997 Neonatal brain injury pattern classification

The National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58673 Respiratory ventilation support assist indicator

Indicator of whether respiratory support and ventilation assistance of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54628 Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale protocol classification category

Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56281 NIH Toolbox Cognitive – Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.