CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C22881 Imaging brain scar gliosis diagnosis indicator

The indicator related to brain scarring gliosis being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C12805 Gene mRNA variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59207 Surgical procedure orthopedic knee type

Type of orthopedic surgical knee procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C56953 Cane stick use type

Type of cane which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C08088 Age value unit of measure

Unit of measure used to initially record the age value

Supplemental Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C18949 Sensory system modalities affected other text

The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C56285 NIH Toolbox Cognitive ? Cognition fluid composite unadjusted scale score

The unadjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22846 Modified Ashworth Scale - Limb tone testing left toes scale

The scale of limb tone testing for the left toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C14433 Cranial nerves global assessment result

The condition of Cranial Nerves

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53659 Test of Everyday Attention for Children (TEA-Ch) - Map mission deviation from first count

Count of the Mission Map count difference from First (Version A) Mission Map count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C19142 Activity type

The types of activities related to rehabilitation services

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C58567 Dynamic upper extremity orthosis splint frequency use laterality type

Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59350 Surgery procedure plantar fascia release left ankle type

Type of plantar fascia release surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C17482 Diabetes mellitus indicator

Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C09577 Brief Pain Inventory (BPI) - worst pain rating scale

Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C59244 Surgery procedure rectus femoris release transfer right knee anatomic site

The free-text field related to the location of the right knee surgical rectus femoris release transfer procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C56293 NIH Toolbox Cognitive – Cognition early childhood composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22854 Modified Ashworth Scale - Limb tone testing left fingers muscle movement type

The type of the muscle movement of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C14442 Muscle bulk assessment abnormality type

The muscle bulk abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53671 Test of Everyday Attention for Children (TEA-Ch) - Walk don't walk count

Count of total correct on the Walk, Don't Walk as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22610 Communication device type

Type for all communication devices the participant/subject currently uses

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
Displaying 176 - 200 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.