CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3052-C59277	C59277	Surgery procedure femoral derotation osteotomy right hip anatomic site	Anatomic site of the surgical femoral derotation osteotomy procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59408	C59408	Passive range motion hip joint left side extension measurement value	Value of the left side hip joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19760	C19760	Medical history strabismus diagnosis indicator	Indicator of medical history of strabismus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2289-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C14127	C14127	Seizure generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as ortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C22613	C22613	Home modification durable medical equipment type	If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53634	C53634	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct B score	Score of Creature Counting total correct B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20813	C20813	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale	The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2200-C22634	C22634	Speech language pathology focus area language social pragmatic intervention type	The type of intervention used for social language and pragmatics as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3050-C59223	C59223	Surgery procedure hamstring lengthen percutaneous left knee anatomic site	Anatomic site of the surgical hamstring lengthening percutaneous procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F1968-C56436	C56436	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval lower bound value	The lower bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58484	C58484	Dynamic lower extremity stretch orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59285	C59285	Surgery procedure varus derotational osteotomy proximal femur right hip type	Type of the surgical varus derotational osteotomy proximal femur procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22620	C22620	Child Effort Rating - Overall scale	The scale representing the overall rating for "Child Effort" across the entire session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59422	C59422	Passive range motion hip joint left side abduction measurement value	Value of the left side hip joint abduction passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22647	C22647	Medical history high myopia indicator	Indicator of whether the participant/subject has been affected by high myopia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C12669	C12669	Height or length measurement type	Type of height or length measurement taken	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F3051-C59402	C59402	Surgery procedure first metatarsal osteotomy arthrodesis ankle laterality type	Laterality type relative to the ankle surgical first metatarsal osteotomy/arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2289-C22867	C22867	Imaging pulse sequence cerebral palsy type	Type of imaging pulse sequence used in cerebral palsy specific case report form (this is using a different permissible value list that overlaps and combines terms within the Imaging pulse sequency type CDE)	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2202-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2060-C20821	C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2200-C22642	C22642	Speech language pathology focus area education school intervention type	The type of intervention used for education and school as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.