CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2015-C53628	C53628	Test of Everyday Attention for Children (TEA-Ch) - Score B score	Score of the Score! B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20807	C20807	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep deepness assessment past week scale	The scale which represents how often the participant's sleep was deep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F1968-C56429	C56429	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score	The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59347	C59347	Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site	Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59240	C59240	Surgery procedure rectus femoris release transfer left knee type	Type of surgical rectus femoris tendon procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2206-C08663	C08663	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text	Text specifying the participant's/subject's first state of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58501	C58501	Transportation device type	Type for all transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22615	C22615	Rehabilitation physician follow-up care indicator	Indicator for follow-up care from a rehabilitation care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2291-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2015-C53636	C53636	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation excess five percent cutoff count	Count of the Creature Counting total correct difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20815	C20815	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale	The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22636	C22636	Speech language pathology focus area cognitive development skill intervention type	The type of intervention used for cognitive and developmental skills as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C56438	C56438	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score	The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56318	C56318	NIH Toolbox Cognitive List scoring working memory age 7 up raw score	The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3051-C59355	C59355	Surgery procedure tibial derotational osteotomy external left ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09582	C09582	Brief Pain Inventory (BPI) - relief received percentage number	Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2203-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C17889	C17889	Gene missense nonsense variant point mutation location exon text	The free-text field about missense/nonsense variant or point mutation at the exon	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53647	C53647	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement count	Count of Sky Search dual task decrement which is the value of the Sky Search DT Weighted time per target value minus the TEAChSkySrchTimeTargetVal (Sky Search time per target) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3053-C59182	C59182	Acetabular index left measurement	The measurement in degrees of the left acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59210	C59210	Surgery procedure anterior hemi epiphyseodesis left knee type	Type of anterior hemi-epiphyseodesis surgical procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.