CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59297 Surgery procedure open reduction right hip perform type

Type of the surgical open reduction procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C18946 Reflex plantar left response other text

The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59229 Surgery procedure hamstring lengthen open right knee anatomic site

Anatomic site of the surgical hamstring lengthening open procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58490 Position device type other text

Text describing the presence of any other positioning device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59257 Surgery procedure adductor lengthen open left hip anatomic site

Anatomic site of the open surgical adductor lengthening procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C14431 Mental status examined type

Type of mental status assessment performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C56343 NIH Toolbox Cognitive – Picture sequence memory age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59344 Surgery procedure toe flexor lengthen right ankle anatomic site

Anatomic site of the surgical toe flexor lengthening procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C56281 NIH Toolbox Cognitive – Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C53654 Test of Everyday Attention for Children (TEA-Ch) - Map mission count

Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22652 Medical history recurrent ear infection indicator

Indicator of whether the participant/subject has been affected by recurrent ear infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22891 Corpus callosum dysplasia status

The status related to dysplasia of the median sagittal section of the brain

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C59448 Passive range motion knee joint right side transmalleolar angle measurement value

Value of the right side knee joint transmalleolar angle passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C12677 Surgical history procedure tympanostomy same ear count

Count of times that the participant/subject has undergone tympanostomy tube insertion in the same ear

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58472 Communications device use indicator

Indicator of whether the participant/subject uses any communication devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C12803 Gene variant or mutation implications confirmed mRNA analysis indicator

Whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C17467 Cardiovascular history arrhythmia atrial flutter indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C52358 Epilepsy type

Type of epilepsy

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22634 Speech language pathology focus area language social pragmatic intervention type

The type of intervention used for social language and pragmatics as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C06058 Pain problem grade

Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.