CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18947 Sensory system global assessment other text

The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59243 Surgery procedure rectus femoris release transfer right knee type

Type of surgical rectus femoris tendon procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08665 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence country text

Text specifying the participant's/subject's first country of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58503 Communication device category type other text

The free-text field related to 'Communication devices category type', specifying other text

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22617 Other physician follow-up care indicator

Indicator for follow-up care from another kind of physician

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14432 Mental status exam abnormality indicator

Whether the mental assessment showed abnormal results

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53638 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score age scaled count

Count of Creature Counting timing score age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20817 Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale

The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22667 Medical history sialorrhea indicator

Indicator of whether the participant/subject has/ had sialorrhea

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22638 Speech language pathology focus area environment factor intervention type

The type of intervention used for environmental factors as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56320 NIH Toolbox Cognitive – List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59357 Surgery procedure tibial derotational osteotomy internal ankle laterality type

Laterality type relative to the ankle surgical tibial derotational osteotomy internal procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59317 Surgery procedure achilles tendon lengthen ankle laterality type

Laterality type relative to the ankle surgical achilles tendon lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58511 Nonspeak communication device type other text

Text describing the presence of any other type of non-speaking communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22598 Therapist count

The number of therapists participating in the treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14441 Muscle bulk assessment abnormality indicator

Whether the muscle bulk assessment found any abnormalities

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20827 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale

The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C59212 Surgery procedure anterior hemi epiphyseodesis right knee type

Type of anterior hemi-epiphyseodesis surgical procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58473 Mobility device use frequency type

Frequency type with which the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59274 Surgery procedure hip femoral derotation osteotomy perform indicator

Indicator of whether the participant/subject has undergone the hip femoral derotation osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.