CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08667 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence well water indicator

Indicator as to whether the participant's/subject's source of drinking water was a private well at the first residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58505 Speak communication device type other text

Text describing the presence of any other type of speaking communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C15910 Assessment date and time

The date of participant's injury

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14434 Cranial nerve abnormal identifier type

The identified cranial nerve that assessed as abnormal

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20819 Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale

The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22669 Medical history recurrent urinary tract infect

Indicator of whether participant/subject has/had recurrent urinary tract infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22640 Speech language pathology focus area home intervention type

The type of intervention used for home as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56444 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score

The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56322 NIH Toolbox Cognitive - List scoring working memory age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59359 Surgery procedure tibial derotational osteotomy internal right ankle anatomic site

Anatomic site of the tibial derotational osteotomy internal procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22844 Modified Ashworth Scale - Limb tone testing left fingers scale

The scale of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59319 Surgery procedure achilles tendon lengthen right ankle type

Type of achilles tendon lengthening surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58513 Access communication device type other text

Text describing the presence of any other type of access communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14443 Muscle tone assessment anatomic site

Anatomic location of the muscle tone as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20829 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale

The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22677 Medical history self injurious behavior disorder

Indicator of whether participant/subject has self-injurious behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05135 Therapy rehabilitation end date time

Date (and time, if applicable and known) on which the therapy or rehabilitation ended

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53218 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets age scaled count

Count of the Sky Search age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56332 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up raw score

The raw score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56409 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score

The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
Displaying 126 - 150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.