CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1126 - 1150 of 1249

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2060-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2207-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58510	C58510	Nonspeak communication device type	Type for all non-speaking communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56334	C56334	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up computed score	The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C22674	C22674	Medical history obsessive compulsive disorder indicator	Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1305-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2016-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1046-C12796	C12796	Gene targeted variant mutational analysis indicator	Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2295-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F1968-C51670	C51670	School name	The name of the school that the subject currently attends, if applicable	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22594	C22594	Communication Function Classification System communication method used type	The type of communication method(s) used, given by the Communication Function Classification System (CFCS)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54631	C54631	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score	Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2203-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3050-C59219	C59219	Surgery procedure distal femoral extension osteotomy right knee other text	The free-text field related to "Surgery procedure distal femoral extension osteotomy right knee type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2015-C53222	C53222	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count	Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2290-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59417	C59417	Passive range motion hip joint left side internal rotation measurement value	Value of the left side hip joint internal rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56413	C56413	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score	The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22602	C22602	Therapy week frequency	The weekly frequency of the patient or client's treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy

Displaying 1126 - 1150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.