CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3042-C09584	C09584	Brief Pain Inventory (BPI) - pain mood interference scale	Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59317	C59317	Surgery procedure achilles tendon lengthen ankle laterality type	Laterality type relative to the ankle surgical achilles tendon lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58511	C58511	Nonspeak communication device type other text	Text describing the presence of any other type of non-speaking communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22598	C22598	Therapist count	The number of therapists participating in the treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C22675	C22675	Medical history oppositional defiance indicator	Indicator of whether participant/subject displays oppositional defiance	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C05133	C05133	Therapy or rehabilitation session duration	Average duration of a therapy or rehabilitation session	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1968-C50680	C50680	Examiner name	The name of the person performing the exam	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53651	C53651	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation from first count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value from first (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2290-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59405	C59405	Passive range motion hip joint type	Type of hip joint passive range of motion	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19058	C19058	Psychiatric history psychotic diagnosis other text	The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54632	C54632	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2203-C12208	C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00026	C00026	Language spoken Fluent text	Text for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56344	C56344	NIH Toolbox Cognitive Picture sequence memory age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3054-C59190	C59190	Gait deviation index barefoot condition score	Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the barefoot condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2016-C56287	C56287	NIH Toolbox Cognitive Cognition fluid composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3050-C59220	C59220	Surgery procedure hamstring lengthen knee perform indicator	Indicator of whether the participant/subject has undergone the knee hamstring lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58481	C58481	Dynamic upper extremity orthosis splint use anatomic site	Anatomic site of the dynamic upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59282	C59282	Surgery procedure varus derotational osteotomy proximal femur left hip neck shaft angle value	Value of the varus derotational osteotomy proximal femur left neck shaft angle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.