CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2291-C22887	C22887	Gait oxygen cost walking value	The metabolic cost of steady-state walking value (mL/kg/m)	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59314	C59314	Surgery procedure gastrocnemius resection left ankle type	Type of gastrocnemius resection surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C08670	C08670	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency	Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58508	C58508	Dedicate speech generating device manufacturer name	Name of manufacturer of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22672	C22672	Medical history behavior difficulty indicator	Indicator of whether participant/subject has/had behavior difficulties	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22643	C22643	Speech language pathology focus area social participation intervention type	The type of intervention used for social participation as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56326	C56326	NIH Toolbox Cognitive Dimensional change card sort age 3 up computed score	The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2289-C56998	C56998	Neonatal brain injury pattern classification text	The free-text field related to the National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58674	C58674	Respiratory ventilation support assist type	Type of respiratory support / ventilation assist type used by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54629	C54629	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score	Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56282	C56282	NIH Toolbox Cognitive Cognition crystallized composite fully adjusted scale score	The fully adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C10543	C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53655	C53655	Test of Everyday Attention for Children (TEA-Ch) - Map mission age scaled count	Count of Mission Map age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59217	C59217	Surgery procedure distal femoral extension osteotomy left knee other text	The free-text field related to "Surgery procedure distal femoral extension osteotomy left knee type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58478	C58478	Orthoses type	Type for all orthoses currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59279	C59279	Surgery procedure femoral derotation osteotomy right hip anatomic site other text	The free-text field related to "Surgery procedure femoral derotation osteotomy right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22599	C22599	Therapy participant family caregiver count	The number of family members and/or caregivers participating in the treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59413	C59413	Passive range motion hip joint left side Thomas Test measurement value	Value of the left side hip joint Thomas Test passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.