CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Exploratory Tardieu Scale Cerebral Palsy Cerebral Palsy
C59310 Surgery procedure arthroplasty left hip perform type other text

The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59286 Surgery procedure varus derotational osteotomy proximal femur left hip type other text

The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur left hip type" specifying other text.

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59281 Surgery procedure varus derotational osteotomy proximal femur hip laterality type

Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22609 Communication device new provide indicator

Whether the participant/subject was provided with new communication device (i.e., touch screen)

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22908 Physical therapy adaptive equipment orthotic session type

The type of session related to adaptive equipment or orthotics related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53630 Test of Everyday Attention for Children (TEA-Ch) - Score deviation excess five percent cutoff count

Count of the Score! difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20809 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep quality assessment past week scale

The scale which represents the participant's description of his/her sleep quality in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22659 Medical history restrictive airway disease indicator

Indicator of whether the participant has been diagnosed with restrictive airway disease

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56431 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value

The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59349 Surgery procedure plantar fascia release ankle laterality type

Laterality type relative to the ankle surgical plantar fascia release procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C18947 Sensory system global assessment other text

The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59243 Surgery procedure rectus femoris release transfer right knee type

Type of surgical rectus femoris tendon procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08665 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence country text

Text specifying the participant's/subject's first country of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58503 Communication device category type other text

The free-text field related to 'Communication devices category type', specifying other text

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22617 Other physician follow-up care indicator

Indicator for follow-up care from another kind of physician

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14432 Mental status exam abnormality indicator

Whether the mental assessment showed abnormal results

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53638 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score age scaled count

Count of Creature Counting timing score age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20817 Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale

The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22667 Medical history sialorrhea indicator

Indicator of whether the participant/subject has/ had sialorrhea

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22638 Speech language pathology focus area environment factor intervention type

The type of intervention used for environmental factors as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56320 NIH Toolbox Cognitive – List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.