CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2122-C08521	C08521	36-item Short Form Health Survey (SF-36) - Bodily pain score	Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59286	C59286	Surgery procedure varus derotational osteotomy proximal femur left hip type other text	The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur left hip type" specifying other text.	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59310	C59310	Surgery procedure arthroplasty left hip perform type other text	The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59281	C59281	Surgery procedure varus derotational osteotomy proximal femur hip laterality type	Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22916	C22916	Ventricular dilatation extra axial qualitative assessment status	The status related to qualitative assessment of extra-axial ventricular/space dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58672	C58672	Hearing impairment severity type	Type of hearing impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17489	C17489	Psychotic disorder indicator	Indicator as to whether the participant/subject has had a psychotic disorder diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2235-C54627	C54627	Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score	Score for the Negativity Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56280	C56280	NIH Toolbox Cognitive Cognition crystallized composite age adjusted scale score	The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C17895	C17895	Genes sequenced with no mutations text	The free-text field about additional genes sequenced with no mutations detected	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53652	C53652	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3053-C59187	C59187	Pelvic obliquity right measurement	The measurement in degrees of the right pelvic obliquity	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59215	C59215	Surgery procedure distal femoral extension osteotomy knee laterality type	Laterality type relative to the knee surgical distal femoral extension osteotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58476	C58476	Mobility device use location type other text	Text describing the presence of any other mobility device location use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59277	C59277	Surgery procedure femoral derotation osteotomy right hip anatomic site	Anatomic site of the surgical femoral derotation osteotomy procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59408	C59408	Passive range motion hip joint left side extension measurement value	Value of the left side hip joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19760	C19760	Medical history strabismus diagnosis indicator	Indicator of medical history of strabismus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2200-C22598	C22598	Therapist count	The number of therapists participating in the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56288	C56288	NIH Toolbox Cognitive Cognition fluid composite fully adjusted scale score	The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C14127	C14127	Seizure generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as ortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.