CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1889
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08509 36-item Short Form Health Survey (SF-36) - Health limited walking miles score

Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C11964 Tardieu Scale relative velocity rate

The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject.

 Exploratory Tardieu Scale False Cerebral Palsy Cerebral Palsy
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C20473 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition false alarm raw score

Raw score for Recognition False Alarms portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Cerebral Palsy Cerebral Palsy
C55951 California Verbal Learning Test - Second Edition (CVLT-II) - Free recall intrusion count

Number of free recall intrusions, as part of the California Verbal Learning Test (CVLT-II).

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Cerebral Palsy Cerebral Palsy
C51104 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Sound symbol retention score

Score for the participant's sound symbol retention, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Cerebral Palsy Cerebral Palsy
C50939 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story B find Oscar recognition score

Score for the participant's recognition of where one would find Oscar in Story B - Fishing Story, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Cerebral Palsy Cerebral Palsy
C22685 Context type other text

The free-text related to Context type specifying other text.

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Cerebral Palsy Cerebral Palsy
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale.

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False Cerebral Palsy Cerebral Palsy
C05106 Surgical or therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

 Supplemental Surgical and Hospitalization History False Cerebral Palsy Cerebral Palsy
C58511 Nonspeak communication device type other text

Text describing the presence of any other type of non-speaking communication device used.

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22598 Therapist count

The number of therapists participating in the treatment session.

 Supplemental Occupational Therapy Treatment Session: Cerebral Palsy False Cerebral Palsy Cerebral Palsy
C14441 Muscle bulk assessment abnormality indicator

Whether the muscle bulk assessment found any abnormalities

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C20827 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale

The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C22675 Medical history oppositional defiance indicator

Indicator of whether participant/subject displays oppositional defiance

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C51152 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal learning recognition 9 older phonologic error total score

Total score for a 9 and older participant's incorrect responses to Verbal Learning Recognition Items that have a phonological resemblance to words on the original list, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Cerebral Palsy Cerebral Palsy
C53216 Test of Everyday Attention for Children (TEA-Ch) ? Assessment version type

Type for the version being administered of the Test of Everyday Attention for Children (TEA-Ch) assessment.

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C05133 Therapy or rehabilitation session duration

Average duration of a therapy or rehabilitation session

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C50987 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal working memory level C item name

Name of the Verbal Working Memory - Level C Item being scored, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Cerebral Palsy Cerebral Palsy
C54602 Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2) - Form version name

Name of the version of the form, as part of the Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2)

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Cerebral Palsy Cerebral Palsy
C56329 NIH Toolbox Cognitive - Dimensional change card sort age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Dimensional Change Card Sort Age 3+ field of the NIH Toolbox Cognitive Battery.

 Supplemental NIH Toolbox Cognitive Battery False Cerebral Palsy Cerebral Palsy
C20494 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 3 completion time

Time to complete Trial 3 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.