CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 951 - 975 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59241 Surgery procedure rectus femoris release transfer left knee anatomic site

The free-text field related to the location of the left knee surgical rectus femoris release transfer procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58502 Communication devices category type

Type of category for all communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22616 Orthopedic surgeon follow-up care indicator

Indicator for follow-up care from an orthopedic surgeon

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14431 Mental status examined type

Type of mental status assessment performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22666 Medical history oropharyngeal dysphagia indicator

Indicator of whether the participant/subject has/had oropharyngeal dysphagia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22637 Speech language pathology focus area augmentative alternative communication intervention type

The type of intervention used for augmentative and alternative communication (AAC) as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56319 NIH Toolbox Cognitive – List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C59356 Surgery procedure tibial derotational osteotomy external right ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22106 Modified Ashworth Scale - Limb tone testing right ankle scale

The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C22889 Sensory system abnormality symptom description text

Text representing the patient's description of his/her abnormal symptoms in his/her sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59316 Surgery procedure achilles tendon lengthen ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58510 Nonspeak communication device type

Type for all non-speaking communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22597 Therapy participant count

The number of patients participating in the therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14440 Muscle bulk assessment anatomic site

Anatomic location of the muscle bulk exam as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22674 Medical history obsessive compulsive disorder indicator

Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C56328 NIH Toolbox Cognitive – Dimensional change card sort age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59364 Surgery procedure calcaneal osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle calcaneal osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 951 - 975 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.